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  3. Replying to Uta Frith's views, one by one.

Replying to Uta Frith's views, one by one.

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  • curiousmagpie@beige.partyC curiousmagpie@beige.party

    @KatyElphinstone thanks - everything feels overwhelming these days. I appreciate the ways you keep us informed.

    katyelphinstone@mas.toK This user is from outside of this forum
    katyelphinstone@mas.toK This user is from outside of this forum
    katyelphinstone@mas.to
    wrote last edited by
    #21

    @CuriousMagpie

    Hm I think I should add to the beginning of the thread that is quite upsetting... A CW.

    I probably should have done that to start with! Sorry about that 😟

    1 Reply Last reply
    0
    • katyelphinstone@mas.toK katyelphinstone@mas.to

      @adelinej

      Oops I missed that! Going back now....

      katyelphinstone@mas.toK This user is from outside of this forum
      katyelphinstone@mas.toK This user is from outside of this forum
      katyelphinstone@mas.to
      wrote last edited by
      #22

      @adelinej

      Thank you for everything πŸ™

      I've also added a proper content warning at the beginning of the thread now.

      Thanks to the post on your page that told me how to do it πŸ’Ÿ

      Apologies as I should've thought of that - after all, I found it upsetting 😒

      seconduniverse@autistics.lifeS 1 Reply Last reply
      0
      • katyelphinstone@mas.toK katyelphinstone@mas.to

        @adelinej

        Thank you for everything πŸ™

        I've also added a proper content warning at the beginning of the thread now.

        Thanks to the post on your page that told me how to do it πŸ’Ÿ

        Apologies as I should've thought of that - after all, I found it upsetting 😒

        seconduniverse@autistics.lifeS This user is from outside of this forum
        seconduniverse@autistics.lifeS This user is from outside of this forum
        seconduniverse@autistics.life
        wrote last edited by
        #23

        @KatyElphinstone @adelinej These "theory of mind" types seem to be fighting a long bitter retreat. But they seem to be fighting it in the right wing press, as the scientific world has moved on.

        katyelphinstone@mas.toK joshsusser@autistics.lifeJ 2 Replies Last reply
        0
        • katyelphinstone@mas.toK katyelphinstone@mas.to

          The Times article: https://www.tes.com/magazine/teaching-learning/general/uta-frith-interview-autism-not-spectrum

          Her podcast with Naomi Fisher: https://substack.com/@naomicfisher/note/p-189989936?r=ql236

          arisummerland@beige.partyA This user is from outside of this forum
          arisummerland@beige.partyA This user is from outside of this forum
          arisummerland@beige.party
          wrote last edited by
          #24

          @KatyElphinstone thank you for doing this point by point. I read her article and I was incensed!

          katyelphinstone@mas.toK 1 Reply Last reply
          0
          • arisummerland@beige.partyA arisummerland@beige.party

            @KatyElphinstone thank you for doing this point by point. I read her article and I was incensed!

            katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.to
            wrote last edited by
            #25

            @arisummerland

            Wasn't it awful?! 😟

            1 Reply Last reply
            0
            • seconduniverse@autistics.lifeS seconduniverse@autistics.life

              @KatyElphinstone @adelinej These "theory of mind" types seem to be fighting a long bitter retreat. But they seem to be fighting it in the right wing press, as the scientific world has moved on.

              katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.to
              wrote last edited by
              #26

              @SecondUniverse

              True 😊
              And that's a good point.

              @adelinej

              dedicto@zeroes.caD 1 Reply Last reply
              0
              • katyelphinstone@mas.toK katyelphinstone@mas.to

                Replying to Uta Frith's views, one by one.

                With thanks to all the members of the autistic community who've informed me & inspired me to write this thread.

                For those lucky not to know about her article in The Times, and various other related statements, links at the end.

                CW: it's upsetting 😟

                A thread 🧡

                #UtaFrith #Research #Autism #Autistic #ActuallyAutistic #Neurodivergent

                petraphoenix@beige.partyP This user is from outside of this forum
                petraphoenix@beige.partyP This user is from outside of this forum
                petraphoenix@beige.party
                wrote last edited by
                #27

                @KatyElphinstone

                Thank you for this. I was FURIOUS when I read her article. She clearly thinks that the lived experience is purely anecdotal.

                I was only diagnosed 2 months ago and this sort of article will only get in the way when I tell certain family members.

                katyelphinstone@mas.toK 1 Reply Last reply
                0
                • seconduniverse@autistics.lifeS seconduniverse@autistics.life

                  @KatyElphinstone @adelinej These "theory of mind" types seem to be fighting a long bitter retreat. But they seem to be fighting it in the right wing press, as the scientific world has moved on.

                  joshsusser@autistics.lifeJ This user is from outside of this forum
                  joshsusser@autistics.lifeJ This user is from outside of this forum
                  joshsusser@autistics.life
                  wrote last edited by
                  #28

                  @SecondUniverse @KatyElphinstone @adelinej Why do these highly-educated academics always get Theory of Mind wrong? ToM is not the ability to read minds. It is the awareness that other individuals have their own thoughts and perceptions that will be different from your own, not the ability to know what those are.

                  seconduniverse@autistics.lifeS miaoue@neurodifferent.meM energetic_nova@mastodon.socialE autisticplushy@lgbtqia.spaceA 4 Replies Last reply
                  0
                  • joshsusser@autistics.lifeJ joshsusser@autistics.life

                    @SecondUniverse @KatyElphinstone @adelinej Why do these highly-educated academics always get Theory of Mind wrong? ToM is not the ability to read minds. It is the awareness that other individuals have their own thoughts and perceptions that will be different from your own, not the ability to know what those are.

                    seconduniverse@autistics.lifeS This user is from outside of this forum
                    seconduniverse@autistics.lifeS This user is from outside of this forum
                    seconduniverse@autistics.life
                    wrote last edited by
                    #29

                    @joshsusser @KatyElphinstone @adelinej What they actually mean is the the autistic person does not have a mind. Sure they can think but they lack the essential "puzzle piece" that would make them human.

                    The Theory of Mind researcher doesn't have a theory of mind about their autistic research subjects.

                    katyelphinstone@mas.toK 1 Reply Last reply
                    0
                    • katyelphinstone@mas.toK katyelphinstone@mas.to

                      Replying to Uta Frith's views, one by one.

                      With thanks to all the members of the autistic community who've informed me & inspired me to write this thread.

                      For those lucky not to know about her article in The Times, and various other related statements, links at the end.

                      CW: it's upsetting 😟

                      A thread 🧡

                      #UtaFrith #Research #Autism #Autistic #ActuallyAutistic #Neurodivergent

                      zigi_now9@autistics.lifeZ This user is from outside of this forum
                      zigi_now9@autistics.lifeZ This user is from outside of this forum
                      zigi_now9@autistics.life
                      wrote last edited by
                      #30

                      @KatyElphinstone Prof. Uta is a disease

                      1 Reply Last reply
                      0
                      • katyelphinstone@mas.toK katyelphinstone@mas.to

                        Her view: We can't have this many autistic people because it’ll overload the system.

                        Reply: This makes it plain that it's the people who serve the system, and not the other way around. Maybe society should be structured so that all people's needs are met, instead?

                        ⬇️

                        #UtaFrith #Research #Neurodiversity

                        staceycornelius@zeroes.caS This user is from outside of this forum
                        staceycornelius@zeroes.caS This user is from outside of this forum
                        staceycornelius@zeroes.ca
                        wrote last edited by
                        #31

                        @KatyElphinstone THIS. πŸ”₯πŸ”₯πŸ”₯

                        Thank you

                        1 Reply Last reply
                        0
                        • katyelphinstone@mas.toK katyelphinstone@mas.to

                          Her view: We can't have this many autistic people because it’ll overload the system.

                          Reply: This makes it plain that it's the people who serve the system, and not the other way around. Maybe society should be structured so that all people's needs are met, instead?

                          ⬇️

                          #UtaFrith #Research #Neurodiversity

                          gooba42@mastodon.socialG This user is from outside of this forum
                          gooba42@mastodon.socialG This user is from outside of this forum
                          gooba42@mastodon.social
                          wrote last edited by
                          #32

                          @KatyElphinstone If the population changes then the systems built to serve it must change too.

                          You don't change people to suit systems, you change systems to serve people. Always. Unconditionally.

                          How are so many people just absolutely wrong?

                          katyelphinstone@mas.toK 1 Reply Last reply
                          0
                          • curiousmagpie@beige.partyC curiousmagpie@beige.party

                            @KatyElphinstone I never get over how people can shock me - which I guess says something good about me πŸ€·πŸ»β€β™€οΈ

                            panda@assemblag.esP This user is from outside of this forum
                            panda@assemblag.esP This user is from outside of this forum
                            panda@assemblag.es
                            wrote last edited by
                            #33

                            @CuriousMagpie @KatyElphinstone Just happened to me. I couldn’t be bothered to read Uta Frith’s article but just saw this.

                            <https://www.aims-2-trials.eu/2026/03/10/roche-and-aims-2-trials-receives-eurordis-black-pearl-award-2026/>

                            Disgusted. This world is really upside down.

                            (For a rather different understanding see my page <https://gizmonaut.net/autism-documents/>)

                            katyelphinstone@mas.toK 2 Replies Last reply
                            0
                            • petraphoenix@beige.partyP petraphoenix@beige.party

                              @KatyElphinstone

                              Thank you for this. I was FURIOUS when I read her article. She clearly thinks that the lived experience is purely anecdotal.

                              I was only diagnosed 2 months ago and this sort of article will only get in the way when I tell certain family members.

                              katyelphinstone@mas.toK This user is from outside of this forum
                              katyelphinstone@mas.toK This user is from outside of this forum
                              katyelphinstone@mas.to
                              wrote last edited by
                              #34

                              @PetraPhoenix

                              Oh no! And yes, that's exactly my worry. That many people will now be invalidated by those close to them, having read the views of 'the expert' 🀨

                              petraphoenix@beige.partyP 1 Reply Last reply
                              0
                              • seconduniverse@autistics.lifeS seconduniverse@autistics.life

                                @joshsusser @KatyElphinstone @adelinej What they actually mean is the the autistic person does not have a mind. Sure they can think but they lack the essential "puzzle piece" that would make them human.

                                The Theory of Mind researcher doesn't have a theory of mind about their autistic research subjects.

                                katyelphinstone@mas.toK This user is from outside of this forum
                                katyelphinstone@mas.toK This user is from outside of this forum
                                katyelphinstone@mas.to
                                wrote last edited by
                                #35

                                @SecondUniverse

                                Good point. The autistic subject must be dehumanized at all costs.
                                Ironic.

                                @joshsusser @adelinej

                                joshsusser@autistics.lifeJ 1 Reply Last reply
                                0
                                • gooba42@mastodon.socialG gooba42@mastodon.social

                                  @KatyElphinstone If the population changes then the systems built to serve it must change too.

                                  You don't change people to suit systems, you change systems to serve people. Always. Unconditionally.

                                  How are so many people just absolutely wrong?

                                  katyelphinstone@mas.toK This user is from outside of this forum
                                  katyelphinstone@mas.toK This user is from outside of this forum
                                  katyelphinstone@mas.to
                                  wrote last edited by
                                  #36

                                  @gooba42

                                  Exactly πŸ’―

                                  1 Reply Last reply
                                  0
                                  • katyelphinstone@mas.toK katyelphinstone@mas.to

                                    @SecondUniverse

                                    Good point. The autistic subject must be dehumanized at all costs.
                                    Ironic.

                                    @joshsusser @adelinej

                                    joshsusser@autistics.lifeJ This user is from outside of this forum
                                    joshsusser@autistics.lifeJ This user is from outside of this forum
                                    joshsusser@autistics.life
                                    wrote last edited by
                                    #37

                                    @KatyElphinstone @SecondUniverse @adelinej so if they cannot recognize autistics as having our own minds, they are bad at Theory of Mind. definitely ironic.

                                    katyelphinstone@mas.toK 1 Reply Last reply
                                    0
                                    • panda@assemblag.esP panda@assemblag.es

                                      @CuriousMagpie @KatyElphinstone Just happened to me. I couldn’t be bothered to read Uta Frith’s article but just saw this.

                                      <https://www.aims-2-trials.eu/2026/03/10/roche-and-aims-2-trials-receives-eurordis-black-pearl-award-2026/>

                                      Disgusted. This world is really upside down.

                                      (For a rather different understanding see my page <https://gizmonaut.net/autism-documents/>)

                                      katyelphinstone@mas.toK This user is from outside of this forum
                                      katyelphinstone@mas.toK This user is from outside of this forum
                                      katyelphinstone@mas.to
                                      wrote last edited by
                                      #38

                                      @panda

                                      Omg 😰

                                      Interesting as I contacted one of the major funding organisations for autism research, to try to get funding for my own study.
                                      🀣🀣🀣
                                      (If I didn't laugh I would cry)

                                      I really just thought, why not, since they're based at Edinburgh University which is where I'm doing my PhD.

                                      @CuriousMagpie

                                      katyelphinstone@mas.toK 1 Reply Last reply
                                      0
                                      • katyelphinstone@mas.toK katyelphinstone@mas.to

                                        @panda

                                        Omg 😰

                                        Interesting as I contacted one of the major funding organisations for autism research, to try to get funding for my own study.
                                        🀣🀣🀣
                                        (If I didn't laugh I would cry)

                                        I really just thought, why not, since they're based at Edinburgh University which is where I'm doing my PhD.

                                        @CuriousMagpie

                                        katyelphinstone@mas.toK This user is from outside of this forum
                                        katyelphinstone@mas.toK This user is from outside of this forum
                                        katyelphinstone@mas.to
                                        wrote last edited by
                                        #39

                                        @panda

                                        I had just seen in the papers that they had received another 87 million on top of the 145 million pounds they already receive annually.

                                        They answered saying they didn't think my research was relevant.

                                        On their site, it say they fund the search for 'treatments' and 'biomarkers'.

                                        I refrained from answering them 'good luck w that one' - but I did write a reply email saying I thought they were barking up the wrong tree (to paraphrase). For my file. They never answered.

                                        @CuriousMagpie

                                        panda@assemblag.esP 1 Reply Last reply
                                        0
                                        • joshsusser@autistics.lifeJ joshsusser@autistics.life

                                          @KatyElphinstone @SecondUniverse @adelinej so if they cannot recognize autistics as having our own minds, they are bad at Theory of Mind. definitely ironic.

                                          katyelphinstone@mas.toK This user is from outside of this forum
                                          katyelphinstone@mas.toK This user is from outside of this forum
                                          katyelphinstone@mas.to
                                          wrote last edited by
                                          #40

                                          @joshsusser

                                          Right?

                                          Is it like the part where she says it's ridiculous to take lived experience as any basis for 'serious' research.

                                          Interesting that so much of the behavioral autism research investigating all of our deficits and impairments is based on the lived experience of non-autistics, of us. Yet I never heard her speak out against that πŸ€·β€β™€οΈ

                                          @SecondUniverse @adelinej

                                          joshsusser@autistics.lifeJ 1 Reply Last reply
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