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irishmecfsassociation@mastodon.ieI

irishmecfsassociation@mastodon.ie

@irishmecfsassociation@mastodon.ie
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  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    28/

    May is ME Awareness month

    You can help by sharing and/or liking this video. Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E.
    symptoms https://www.youtube.com/watch?v=py-DWLyhJ2g Day 28

    #MEcfs #PwME #MEawareness
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    27/

    May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

    You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

    Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

    @mecfs #mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    26/

    3-minute Action For M.E. #ME video. Uses survey data to list symptoms
    & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

    #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
    #ChronicFatigueSyndrome
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    25/

    Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

    #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
    @mecfs #mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    24/
    “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
    different people describe different losses & impairments.”

    #MEcfs #PwME @mecfs @tomkindlon

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    24/
    May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

    Link Preview Image
    Patients' Accounts - Symptoms - Dialogues

    favicon

    Dialogues (www.dialogues-mecfs.co.uk)

    Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

    #pwme
    @mecfs #mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    23/

    Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
    Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
    this 9-minute video

    https://youtu.be/r0w9-eQ_fKQ

    Day 23

    #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
    #ChronicFatigueSyndrome #PwME #MyE

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    22/

    Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
    Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
    this 3-minute video by me association

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 22

    #MEcfs #PwME

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    21/

    May is ME/CFS Awareness Month.

    You can help raise awareness and understanding by sharing and/or
    liking this 30-second video from the US Disease Control and Prevention
    (CDC)

    https://youtu.be/bCUvygbYdXs

    Day 21 #MEcfs #CFS

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    20/

    May is M.E. Awareness Month.

    You can help by sharing and/or liking this video, a 1993 documentary,
    Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
    interviews from Tom Hennessy.
    https://www.youtube.com/watch?v=SyB49g_l9Sg

    Day 20

    #MyalgicE
    #MyalgicEncephalomyelitis #PwME #MEcfs

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    19/

    May is Myalgic Encephalomyelitis (M.E.) Awareness Month

    You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
    Syndrome (CFS) to other people" (2 minutes)

    https://youtu.be/G4Rijt8jtZg

    Day 19

    #MEcfs #CFS

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    18/

    May is #MyalgicEncephalomyelitis (ME) Awareness Month.

    You can help to raise awareness and understanding by retweeting and/or
    liking this 7 minute 8 second-video made on a young UK woman with
    severe ME
    https://www.youtube.com/watch?v=cPH3kKkEYAI

    Day 18
    #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    17/

    May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
    Awareness Month.

    Please help by sharing +/or liking this 6-minute Paper Stop-motion
    Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
    #PwME #MyE #MEeps
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    16/

    May is #MEcfs awareness month.

    Please help by sharing +/or liking this Golden Girls episode on #CFS
    https://youtu.be/vVyLZTKDy2E

    #Day 16

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    15/

    May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

    You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 15

    #MEcfs #PwME

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    14/

    (2 minutes)
    "How does it feel to live with ME/CFS? Patients describe what it's like"

    May is ME Awareness Month.
    You can help raise awareness and understanding by sharing and/or
    liking this video

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 14
    #MyalgicE #MyalgicEncephalomyelitis
    #mecfs @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    13/

    This is a short (78-second) video about postexertional malaise in ME/CFS.

    It uses the battery analogy, but also highlights the effects of payback. There is no sound.

    May is #MEAwarenessMonth.

    You can help by reposting and/or liking this video
    https://www.youtube.com/watch?v=THlRW_YGZmE

    Day 13 #MEcfs
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    12/

    May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.

    (3 minutes)

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 12
    #MyalgicE #May12 #May12th #WorldMEDay2026
    #WorldMEday #MEAwarenessDay
    #mecfs
    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    11/

    #May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
    &
    May is #MECFSawarenessmonth

    Please help by reposting and/or liking this 12-minute documentary
    which features Whitney Dafoe & others

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day11

    #PwME #SevereME
    #mecfs

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs

  • 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.
    irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    10/

    May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

    You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to
    14:50 to go to the start of "Invisible" proper]
    http://cctv.org/watch-tv/programs/invisible-vermont

    Day 10

    #MEcfs #PwME

    @mecfs

    Uncategorized myalgice myalgicencephal mecfs
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