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  3. 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

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myalgicemyalgicencephalmecfs
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  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    13/

    This is a short (78-second) video about postexertional malaise in ME/CFS.

    It uses the battery analogy, but also highlights the effects of payback. There is no sound.

    May is #MEAwarenessMonth.

    You can help by reposting and/or liking this video
    https://www.youtube.com/watch?v=THlRW_YGZmE

    Day 13 #MEcfs
    @mecfs

    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ie
    wrote last edited by
    #14

    14/

    (2 minutes)
    "How does it feel to live with ME/CFS? Patients describe what it's like"

    May is ME Awareness Month.
    You can help raise awareness and understanding by sharing and/or
    liking this video

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 14
    #MyalgicE #MyalgicEncephalomyelitis
    #mecfs @mecfs

    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
    0
    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

      14/

      (2 minutes)
      "How does it feel to live with ME/CFS? Patients describe what it's like"

      May is ME Awareness Month.
      You can help raise awareness and understanding by sharing and/or
      liking this video

      - YouTube

      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

      favicon

      (www.youtube.com)

      Day 14
      #MyalgicE #MyalgicEncephalomyelitis
      #mecfs @mecfs

      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ie
      wrote last edited by
      #15

      15/

      May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

      You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

      - YouTube

      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

      favicon

      (www.youtube.com)

      Day 15

      #MEcfs #PwME

      @mecfs

      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
      0
      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

        15/

        May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

        You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

        - YouTube

        Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

        favicon

        (www.youtube.com)

        Day 15

        #MEcfs #PwME

        @mecfs

        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ie
        wrote last edited by
        #16

        16/

        May is #MEcfs awareness month.

        Please help by sharing +/or liking this Golden Girls episode on #CFS
        https://youtu.be/vVyLZTKDy2E

        #Day 16

        #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

        @mecfs

        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
        0
        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

          16/

          May is #MEcfs awareness month.

          Please help by sharing +/or liking this Golden Girls episode on #CFS
          https://youtu.be/vVyLZTKDy2E

          #Day 16

          #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

          @mecfs

          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ie
          wrote last edited by
          #17

          17/

          May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
          Awareness Month.

          Please help by sharing +/or liking this 6-minute Paper Stop-motion
          Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

          #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
          #PwME #MyE #MEeps
          @mecfs

          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
          0
          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

            17/

            May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
            Awareness Month.

            Please help by sharing +/or liking this 6-minute Paper Stop-motion
            Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

            #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
            #PwME #MyE #MEeps
            @mecfs

            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ie
            wrote last edited by
            #18

            18/

            May is #MyalgicEncephalomyelitis (ME) Awareness Month.

            You can help to raise awareness and understanding by retweeting and/or
            liking this 7 minute 8 second-video made on a young UK woman with
            severe ME
            https://www.youtube.com/watch?v=cPH3kKkEYAI

            Day 18
            #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
            @mecfs

            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
            0
            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

              18/

              May is #MyalgicEncephalomyelitis (ME) Awareness Month.

              You can help to raise awareness and understanding by retweeting and/or
              liking this 7 minute 8 second-video made on a young UK woman with
              severe ME
              https://www.youtube.com/watch?v=cPH3kKkEYAI

              Day 18
              #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
              @mecfs

              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ie
              wrote last edited by
              #19

              19/

              May is Myalgic Encephalomyelitis (M.E.) Awareness Month

              You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
              Syndrome (CFS) to other people" (2 minutes)

              https://youtu.be/G4Rijt8jtZg

              Day 19

              #MEcfs #CFS

              @mecfs

              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
              0
              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                19/

                May is Myalgic Encephalomyelitis (M.E.) Awareness Month

                You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
                Syndrome (CFS) to other people" (2 minutes)

                https://youtu.be/G4Rijt8jtZg

                Day 19

                #MEcfs #CFS

                @mecfs

                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ie
                wrote last edited by
                #20

                20/

                May is M.E. Awareness Month.

                You can help by sharing and/or liking this video, a 1993 documentary,
                Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
                interviews from Tom Hennessy.
                https://www.youtube.com/watch?v=SyB49g_l9Sg

                Day 20

                #MyalgicE
                #MyalgicEncephalomyelitis #PwME #MEcfs

                @mecfs

                irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                0
                • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                  20/

                  May is M.E. Awareness Month.

                  You can help by sharing and/or liking this video, a 1993 documentary,
                  Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
                  interviews from Tom Hennessy.
                  https://www.youtube.com/watch?v=SyB49g_l9Sg

                  Day 20

                  #MyalgicE
                  #MyalgicEncephalomyelitis #PwME #MEcfs

                  @mecfs

                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ie
                  wrote last edited by
                  #21

                  21/

                  May is ME/CFS Awareness Month.

                  You can help raise awareness and understanding by sharing and/or
                  liking this 30-second video from the US Disease Control and Prevention
                  (CDC)

                  https://youtu.be/bCUvygbYdXs

                  Day 21 #MEcfs #CFS

                  @mecfs

                  irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                  0
                  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                    21/

                    May is ME/CFS Awareness Month.

                    You can help raise awareness and understanding by sharing and/or
                    liking this 30-second video from the US Disease Control and Prevention
                    (CDC)

                    https://youtu.be/bCUvygbYdXs

                    Day 21 #MEcfs #CFS

                    @mecfs

                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ie
                    wrote last edited by
                    #22

                    22/

                    Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                    Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                    this 3-minute video by me association

                    - YouTube

                    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                    favicon

                    (www.youtube.com)

                    Day 22

                    #MEcfs #PwME

                    @mecfs

                    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                    0
                    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                      22/

                      Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                      Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                      this 3-minute video by me association

                      - YouTube

                      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                      favicon

                      (www.youtube.com)

                      Day 22

                      #MEcfs #PwME

                      @mecfs

                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ie
                      wrote last edited by
                      #23

                      23/

                      Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                      Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                      this 9-minute video

                      https://youtu.be/r0w9-eQ_fKQ

                      Day 23

                      #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                      #ChronicFatigueSyndrome #PwME #MyE

                      @mecfs

                      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                      0
                      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                        23/

                        Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                        Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                        this 9-minute video

                        https://youtu.be/r0w9-eQ_fKQ

                        Day 23

                        #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                        #ChronicFatigueSyndrome #PwME #MyE

                        @mecfs

                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ie
                        wrote last edited by
                        #24

                        24/
                        May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                        Link Preview Image
                        Patients' Accounts - Symptoms - Dialogues

                        favicon

                        Dialogues (www.dialogues-mecfs.co.uk)

                        Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                        #pwme
                        @mecfs #mecfs

                        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                        0
                        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                          24/
                          May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                          Link Preview Image
                          Patients' Accounts - Symptoms - Dialogues

                          favicon

                          Dialogues (www.dialogues-mecfs.co.uk)

                          Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                          #pwme
                          @mecfs #mecfs

                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ie
                          wrote last edited by
                          #25

                          24/
                          “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                          different people describe different losses & impairments.”

                          #MEcfs #PwME @mecfs @tomkindlon

                          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                          0
                          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                            24/
                            “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                            different people describe different losses & impairments.”

                            #MEcfs #PwME @mecfs @tomkindlon

                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ie
                            wrote last edited by
                            #26

                            25/

                            Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                            #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                            @mecfs #mecfs

                            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                            0
                            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                              25/

                              Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                              #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                              @mecfs #mecfs

                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ie
                              wrote last edited by
                              #27

                              26/

                              3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                              & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                              #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                              #ChronicFatigueSyndrome
                              @mecfs

                              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                              0
                              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                26/

                                3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                                & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                                #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                                #ChronicFatigueSyndrome
                                @mecfs

                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ie
                                wrote last edited by
                                #28

                                27/

                                May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                                You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                                Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                                @mecfs #mecfs

                                irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                                0
                                • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                  27/

                                  May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                                  You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                                  Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                                  @mecfs #mecfs

                                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                  irishmecfsassociation@mastodon.ie
                                  wrote last edited by
                                  #29

                                  28/

                                  May is ME Awareness month

                                  You can help by sharing and/or liking this video. Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E.
                                  symptoms https://www.youtube.com/watch?v=py-DWLyhJ2g Day 28

                                  #MEcfs #PwME #MEawareness
                                  @mecfs

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