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  3. 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

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myalgicemyalgicencephalmecfs
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  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    14/

    (2 minutes)
    "How does it feel to live with ME/CFS? Patients describe what it's like"

    May is ME Awareness Month.
    You can help raise awareness and understanding by sharing and/or
    liking this video

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 14
    #MyalgicE #MyalgicEncephalomyelitis
    #mecfs @mecfs

    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ie
    wrote last edited by
    #15

    15/

    May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

    You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day 15

    #MEcfs #PwME

    @mecfs

    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
    0
    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

      15/

      May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

      You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

      - YouTube

      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

      favicon

      (www.youtube.com)

      Day 15

      #MEcfs #PwME

      @mecfs

      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ie
      wrote last edited by
      #16

      16/

      May is #MEcfs awareness month.

      Please help by sharing +/or liking this Golden Girls episode on #CFS
      https://youtu.be/vVyLZTKDy2E

      #Day 16

      #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

      @mecfs

      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
      0
      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

        16/

        May is #MEcfs awareness month.

        Please help by sharing +/or liking this Golden Girls episode on #CFS
        https://youtu.be/vVyLZTKDy2E

        #Day 16

        #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

        @mecfs

        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ie
        wrote last edited by
        #17

        17/

        May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
        Awareness Month.

        Please help by sharing +/or liking this 6-minute Paper Stop-motion
        Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

        #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
        #PwME #MyE #MEeps
        @mecfs

        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
        0
        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

          17/

          May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
          Awareness Month.

          Please help by sharing +/or liking this 6-minute Paper Stop-motion
          Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

          #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
          #PwME #MyE #MEeps
          @mecfs

          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ie
          wrote last edited by
          #18

          18/

          May is #MyalgicEncephalomyelitis (ME) Awareness Month.

          You can help to raise awareness and understanding by retweeting and/or
          liking this 7 minute 8 second-video made on a young UK woman with
          severe ME
          https://www.youtube.com/watch?v=cPH3kKkEYAI

          Day 18
          #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
          @mecfs

          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
          0
          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

            18/

            May is #MyalgicEncephalomyelitis (ME) Awareness Month.

            You can help to raise awareness and understanding by retweeting and/or
            liking this 7 minute 8 second-video made on a young UK woman with
            severe ME
            https://www.youtube.com/watch?v=cPH3kKkEYAI

            Day 18
            #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
            @mecfs

            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ie
            wrote last edited by
            #19

            19/

            May is Myalgic Encephalomyelitis (M.E.) Awareness Month

            You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
            Syndrome (CFS) to other people" (2 minutes)

            https://youtu.be/G4Rijt8jtZg

            Day 19

            #MEcfs #CFS

            @mecfs

            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
            0
            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

              19/

              May is Myalgic Encephalomyelitis (M.E.) Awareness Month

              You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
              Syndrome (CFS) to other people" (2 minutes)

              https://youtu.be/G4Rijt8jtZg

              Day 19

              #MEcfs #CFS

              @mecfs

              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ie
              wrote last edited by
              #20

              20/

              May is M.E. Awareness Month.

              You can help by sharing and/or liking this video, a 1993 documentary,
              Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
              interviews from Tom Hennessy.
              https://www.youtube.com/watch?v=SyB49g_l9Sg

              Day 20

              #MyalgicE
              #MyalgicEncephalomyelitis #PwME #MEcfs

              @mecfs

              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
              0
              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                20/

                May is M.E. Awareness Month.

                You can help by sharing and/or liking this video, a 1993 documentary,
                Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
                interviews from Tom Hennessy.
                https://www.youtube.com/watch?v=SyB49g_l9Sg

                Day 20

                #MyalgicE
                #MyalgicEncephalomyelitis #PwME #MEcfs

                @mecfs

                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ie
                wrote last edited by
                #21

                21/

                May is ME/CFS Awareness Month.

                You can help raise awareness and understanding by sharing and/or
                liking this 30-second video from the US Disease Control and Prevention
                (CDC)

                https://youtu.be/bCUvygbYdXs

                Day 21 #MEcfs #CFS

                @mecfs

                irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                0
                • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                  21/

                  May is ME/CFS Awareness Month.

                  You can help raise awareness and understanding by sharing and/or
                  liking this 30-second video from the US Disease Control and Prevention
                  (CDC)

                  https://youtu.be/bCUvygbYdXs

                  Day 21 #MEcfs #CFS

                  @mecfs

                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ie
                  wrote last edited by
                  #22

                  22/

                  Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                  Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                  this 3-minute video by me association

                  - YouTube

                  Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                  favicon

                  (www.youtube.com)

                  Day 22

                  #MEcfs #PwME

                  @mecfs

                  irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                  0
                  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                    22/

                    Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                    Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                    this 3-minute video by me association

                    - YouTube

                    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                    favicon

                    (www.youtube.com)

                    Day 22

                    #MEcfs #PwME

                    @mecfs

                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ie
                    wrote last edited by
                    #23

                    23/

                    Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                    Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                    this 9-minute video

                    https://youtu.be/r0w9-eQ_fKQ

                    Day 23

                    #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                    #ChronicFatigueSyndrome #PwME #MyE

                    @mecfs

                    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                    0
                    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                      23/

                      Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                      Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                      this 9-minute video

                      https://youtu.be/r0w9-eQ_fKQ

                      Day 23

                      #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                      #ChronicFatigueSyndrome #PwME #MyE

                      @mecfs

                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ie
                      wrote last edited by
                      #24

                      24/
                      May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                      Link Preview Image
                      Patients' Accounts - Symptoms - Dialogues

                      favicon

                      Dialogues (www.dialogues-mecfs.co.uk)

                      Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                      #pwme
                      @mecfs #mecfs

                      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                      0
                      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                        24/
                        May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                        Link Preview Image
                        Patients' Accounts - Symptoms - Dialogues

                        favicon

                        Dialogues (www.dialogues-mecfs.co.uk)

                        Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                        #pwme
                        @mecfs #mecfs

                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ie
                        wrote last edited by
                        #25

                        24/
                        “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                        different people describe different losses & impairments.”

                        #MEcfs #PwME @mecfs @tomkindlon

                        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                        0
                        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                          24/
                          “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                          different people describe different losses & impairments.”

                          #MEcfs #PwME @mecfs @tomkindlon

                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ie
                          wrote last edited by
                          #26

                          25/

                          Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                          #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                          @mecfs #mecfs

                          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                          0
                          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                            25/

                            Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                            #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                            @mecfs #mecfs

                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ie
                            wrote last edited by
                            #27

                            26/

                            3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                            & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                            #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                            #ChronicFatigueSyndrome
                            @mecfs

                            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                            0
                            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                              26/

                              3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                              & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                              #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                              #ChronicFatigueSyndrome
                              @mecfs

                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ie
                              wrote last edited by
                              #28

                              27/

                              May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                              You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                              Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                              @mecfs #mecfs

                              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                              0
                              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                27/

                                May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                                You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                                Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                                @mecfs #mecfs

                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ie
                                wrote last edited by
                                #29

                                28/

                                May is ME Awareness month

                                You can help by sharing and/or liking this video. Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E.
                                symptoms https://www.youtube.com/watch?v=py-DWLyhJ2g Day 28

                                #MEcfs #PwME #MEawareness
                                @mecfs

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