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  1. Home
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  3. 🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

🧵May is Myalgic Encephalomyelitis (ME) Awareness Month.

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  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

    10/

    May is #MyalgicEncephalomyelitis (M.E.) Awareness Month.

    You can help by sharing this documentary, "Invisible". It's a 60-minute documentary made in 2009 (but is timeless) [Skip forward to
    14:50 to go to the start of "Invisible" proper]
    http://cctv.org/watch-tv/programs/invisible-vermont

    Day 10

    #MEcfs #PwME

    @mecfs

    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
    irishmecfsassociation@mastodon.ie
    wrote last edited by
    #11

    11/

    #May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
    &
    May is #MECFSawarenessmonth

    Please help by reposting and/or liking this 12-minute documentary
    which features Whitney Dafoe & others

    - YouTube

    Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

    favicon

    (www.youtube.com)

    Day11

    #PwME #SevereME
    #mecfs

    @mecfs

    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
    0
    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

      11/

      #May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
      &
      May is #MECFSawarenessmonth

      Please help by reposting and/or liking this 12-minute documentary
      which features Whitney Dafoe & others

      - YouTube

      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

      favicon

      (www.youtube.com)

      Day11

      #PwME #SevereME
      #mecfs

      @mecfs

      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
      irishmecfsassociation@mastodon.ie
      wrote last edited by
      #12

      12/

      May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.

      (3 minutes)

      - YouTube

      Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

      favicon

      (www.youtube.com)

      Day 12
      #MyalgicE #May12 #May12th #WorldMEDay2026
      #WorldMEday #MEAwarenessDay
      #mecfs
      @mecfs

      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
      0
      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

        12/

        May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.

        (3 minutes)

        - YouTube

        Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

        favicon

        (www.youtube.com)

        Day 12
        #MyalgicE #May12 #May12th #WorldMEDay2026
        #WorldMEday #MEAwarenessDay
        #mecfs
        @mecfs

        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
        irishmecfsassociation@mastodon.ie
        wrote last edited by
        #13

        13/

        This is a short (78-second) video about postexertional malaise in ME/CFS.

        It uses the battery analogy, but also highlights the effects of payback. There is no sound.

        May is #MEAwarenessMonth.

        You can help by reposting and/or liking this video
        https://www.youtube.com/watch?v=THlRW_YGZmE

        Day 13 #MEcfs
        @mecfs

        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
        0
        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

          13/

          This is a short (78-second) video about postexertional malaise in ME/CFS.

          It uses the battery analogy, but also highlights the effects of payback. There is no sound.

          May is #MEAwarenessMonth.

          You can help by reposting and/or liking this video
          https://www.youtube.com/watch?v=THlRW_YGZmE

          Day 13 #MEcfs
          @mecfs

          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
          irishmecfsassociation@mastodon.ie
          wrote last edited by
          #14

          14/

          (2 minutes)
          "How does it feel to live with ME/CFS? Patients describe what it's like"

          May is ME Awareness Month.
          You can help raise awareness and understanding by sharing and/or
          liking this video

          - YouTube

          Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

          favicon

          (www.youtube.com)

          Day 14
          #MyalgicE #MyalgicEncephalomyelitis
          #mecfs @mecfs

          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
          0
          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

            14/

            (2 minutes)
            "How does it feel to live with ME/CFS? Patients describe what it's like"

            May is ME Awareness Month.
            You can help raise awareness and understanding by sharing and/or
            liking this video

            - YouTube

            Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

            favicon

            (www.youtube.com)

            Day 14
            #MyalgicE #MyalgicEncephalomyelitis
            #mecfs @mecfs

            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
            irishmecfsassociation@mastodon.ie
            wrote last edited by
            #15

            15/

            May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

            You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

            - YouTube

            Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

            favicon

            (www.youtube.com)

            Day 15

            #MEcfs #PwME

            @mecfs

            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
            0
            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

              15/

              May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

              You can help by sharing and/or liking this 7-minute video, "What is ME? (Myalgic Encephalomyelitis aka Chronic Fatigue Syndrome CFS)" by Broken Battery

              - YouTube

              Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

              favicon

              (www.youtube.com)

              Day 15

              #MEcfs #PwME

              @mecfs

              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
              irishmecfsassociation@mastodon.ie
              wrote last edited by
              #16

              16/

              May is #MEcfs awareness month.

              Please help by sharing +/or liking this Golden Girls episode on #CFS
              https://youtu.be/vVyLZTKDy2E

              #Day 16

              #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

              @mecfs

              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
              0
              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                16/

                May is #MEcfs awareness month.

                Please help by sharing +/or liking this Golden Girls episode on #CFS
                https://youtu.be/vVyLZTKDy2E

                #Day 16

                #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

                @mecfs

                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                irishmecfsassociation@mastodon.ie
                wrote last edited by
                #17

                17/

                May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
                Awareness Month.

                Please help by sharing +/or liking this 6-minute Paper Stop-motion
                Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

                #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
                #PwME #MyE #MEeps
                @mecfs

                irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                0
                • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                  17/

                  May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (#MECFS)
                  Awareness Month.

                  Please help by sharing +/or liking this 6-minute Paper Stop-motion
                  Animation About ME/CFS https://www.youtube.com/watch?v=dUrPFqGONM8

                  #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #MyalgicE
                  #PwME #MyE #MEeps
                  @mecfs

                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                  irishmecfsassociation@mastodon.ie
                  wrote last edited by
                  #18

                  18/

                  May is #MyalgicEncephalomyelitis (ME) Awareness Month.

                  You can help to raise awareness and understanding by retweeting and/or
                  liking this 7 minute 8 second-video made on a young UK woman with
                  severe ME
                  https://www.youtube.com/watch?v=cPH3kKkEYAI

                  Day 18
                  #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
                  @mecfs

                  irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                  0
                  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                    18/

                    May is #MyalgicEncephalomyelitis (ME) Awareness Month.

                    You can help to raise awareness and understanding by retweeting and/or
                    liking this 7 minute 8 second-video made on a young UK woman with
                    severe ME
                    https://www.youtube.com/watch?v=cPH3kKkEYAI

                    Day 18
                    #SevereME #SevereCFS #SevereMECFS #MEcfs #PwME
                    @mecfs

                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                    irishmecfsassociation@mastodon.ie
                    wrote last edited by
                    #19

                    19/

                    May is Myalgic Encephalomyelitis (M.E.) Awareness Month

                    You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
                    Syndrome (CFS) to other people" (2 minutes)

                    https://youtu.be/G4Rijt8jtZg

                    Day 19

                    #MEcfs #CFS

                    @mecfs

                    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                    0
                    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                      19/

                      May is Myalgic Encephalomyelitis (M.E.) Awareness Month

                      You can help by re-posting +/or liking this video. "A wonderfully illustrated comic to explain M.E also known as Chronic Fatigue
                      Syndrome (CFS) to other people" (2 minutes)

                      https://youtu.be/G4Rijt8jtZg

                      Day 19

                      #MEcfs #CFS

                      @mecfs

                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                      irishmecfsassociation@mastodon.ie
                      wrote last edited by
                      #20

                      20/

                      May is M.E. Awareness Month.

                      You can help by sharing and/or liking this video, a 1993 documentary,
                      Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
                      interviews from Tom Hennessy.
                      https://www.youtube.com/watch?v=SyB49g_l9Sg

                      Day 20

                      #MyalgicE
                      #MyalgicEncephalomyelitis #PwME #MEcfs

                      @mecfs

                      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                      0
                      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                        20/

                        May is M.E. Awareness Month.

                        You can help by sharing and/or liking this video, a 1993 documentary,
                        Living Hell. 14:00-1:10:16 (i.e. 56 minutes). There are also 2
                        interviews from Tom Hennessy.
                        https://www.youtube.com/watch?v=SyB49g_l9Sg

                        Day 20

                        #MyalgicE
                        #MyalgicEncephalomyelitis #PwME #MEcfs

                        @mecfs

                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                        irishmecfsassociation@mastodon.ie
                        wrote last edited by
                        #21

                        21/

                        May is ME/CFS Awareness Month.

                        You can help raise awareness and understanding by sharing and/or
                        liking this 30-second video from the US Disease Control and Prevention
                        (CDC)

                        https://youtu.be/bCUvygbYdXs

                        Day 21 #MEcfs #CFS

                        @mecfs

                        irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                        0
                        • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                          21/

                          May is ME/CFS Awareness Month.

                          You can help raise awareness and understanding by sharing and/or
                          liking this 30-second video from the US Disease Control and Prevention
                          (CDC)

                          https://youtu.be/bCUvygbYdXs

                          Day 21 #MEcfs #CFS

                          @mecfs

                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                          irishmecfsassociation@mastodon.ie
                          wrote last edited by
                          #22

                          22/

                          Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                          Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                          this 3-minute video by me association

                          - YouTube

                          Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                          favicon

                          (www.youtube.com)

                          Day 22

                          #MEcfs #PwME

                          @mecfs

                          irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                          0
                          • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                            22/

                            Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                            Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                            this 3-minute video by me association

                            - YouTube

                            Auf YouTube findest du die angesagtesten Videos und Tracks. Außerdem kannst du eigene Inhalte hochladen und mit Freunden oder gleich der ganzen Welt teilen.

                            favicon

                            (www.youtube.com)

                            Day 22

                            #MEcfs #PwME

                            @mecfs

                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                            irishmecfsassociation@mastodon.ie
                            wrote last edited by
                            #23

                            23/

                            Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                            Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                            this 9-minute video

                            https://youtu.be/r0w9-eQ_fKQ

                            Day 23

                            #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                            #ChronicFatigueSyndrome #PwME #MyE

                            @mecfs

                            irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                            0
                            • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                              23/

                              Educate others about Myalgic Encephalomyelitis / Chronic Fatigue
                              Syndrome during ME/CFS Awareness month (May) by sharing and/or liking
                              this 9-minute video

                              https://youtu.be/r0w9-eQ_fKQ

                              Day 23

                              #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                              #ChronicFatigueSyndrome #PwME #MyE

                              @mecfs

                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                              irishmecfsassociation@mastodon.ie
                              wrote last edited by
                              #24

                              24/
                              May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                              Link Preview Image
                              Patients' Accounts - Symptoms - Dialogues

                              favicon

                              Dialogues (www.dialogues-mecfs.co.uk)

                              Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                              #pwme
                              @mecfs #mecfs

                              irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                              0
                              • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                24/
                                May is Myalgic Encephalomyelitis Awareness Month. You can help by sharing +/or liking this video, "Reduced Function".

                                Link Preview Image
                                Patients' Accounts - Symptoms - Dialogues

                                favicon

                                Dialogues (www.dialogues-mecfs.co.uk)

                                Our trustees Tom & Vera Kindlon (15:24-16:56) are among the interviewees in this, at some points, very moving 20-minute video (contd)

                                #pwme
                                @mecfs #mecfs

                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                irishmecfsassociation@mastodon.ie
                                wrote last edited by
                                #25

                                24/
                                “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                                different people describe different losses & impairments.”

                                #MEcfs #PwME @mecfs @tomkindlon

                                irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                                0
                                • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                  24/
                                  “(Contd) describing how ME/CFS has led to reduced functioning. However we’d encourage people to watch the whole video, if possible, as
                                  different people describe different losses & impairments.”

                                  #MEcfs #PwME @mecfs @tomkindlon

                                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                  irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                  irishmecfsassociation@mastodon.ie
                                  wrote last edited by
                                  #26

                                  25/

                                  Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                                  #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                                  @mecfs #mecfs

                                  irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                                  0
                                  • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                    25/

                                    Learn more about Myalgic Encephalomyelitis for ME Awareness month (May) with this 4-minute video https://youtu.be/ZgAa-l-N1Eg

                                    #MyalgicE #PwME #MyalgicEncephalomyelitis Day 25
                                    @mecfs #mecfs

                                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                    irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                    irishmecfsassociation@mastodon.ie
                                    wrote last edited by
                                    #27

                                    26/

                                    3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                                    & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                                    #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                                    #ChronicFatigueSyndrome
                                    @mecfs

                                    irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                                    0
                                    • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                      26/

                                      3-minute Action For M.E. #ME video. Uses survey data to list symptoms
                                      & for examples of effects on life https://youtu.be/3aBfoGeUXUg Day 26

                                      #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis
                                      #ChronicFatigueSyndrome
                                      @mecfs

                                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                      irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                      irishmecfsassociation@mastodon.ie
                                      wrote last edited by
                                      #28

                                      27/

                                      May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                                      You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                                      Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                                      @mecfs #mecfs

                                      irishmecfsassociation@mastodon.ieI 1 Reply Last reply
                                      0
                                      • irishmecfsassociation@mastodon.ieI irishmecfsassociation@mastodon.ie

                                        27/

                                        May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

                                        You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"

                                        Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics http://www.dialogues-mecfs.co.uk/films/severeme/

                                        @mecfs #mecfs

                                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                        irishmecfsassociation@mastodon.ieI This user is from outside of this forum
                                        irishmecfsassociation@mastodon.ie
                                        wrote last edited by
                                        #29

                                        28/

                                        May is ME Awareness month

                                        You can help by sharing and/or liking this video. Teenager Ashleigh Lovett made a short (3 minute 28 second) film explaining M.E. Another teenager wore weights on legs and arms to partly experience M.E.
                                        symptoms https://www.youtube.com/watch?v=py-DWLyhJ2g Day 28

                                        #MEcfs #PwME #MEawareness
                                        @mecfs

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