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  3. Most autistic people, despite everything, actually like being autistic.

Most autistic people, despite everything, actually like being autistic.

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neurodivergentactuallyautistiautism
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  • katyelphinstone@mas.toK katyelphinstone@mas.to

    There is, quite literally, an Autism Investor Summit – where autism services are discussed in terms of market growth and M&A.

    So yes.

    Autism is also a business model.
    (refs at the end)

    9/11

    panda@assemblag.esP This user is from outside of this forum
    panda@assemblag.esP This user is from outside of this forum
    panda@assemblag.es
    wrote last edited by
    #37

    @KatyElphinstone Often called the ‘Autism Industrial Complex’.

    katyelphinstone@mas.toK 1 Reply Last reply
    0
    • katyelphinstone@mas.toK katyelphinstone@mas.to

      That idea – that there’s a separable ‘pure self’ – is basically not one that's shared by us.

      But it's very popular elsewhere!

      Many millions are poured into #autism research every year, in the areas of treatment, intervention, prevention, and the hunt for biomarkers.

      💰💰💰

      3/11

      stevebrady@mastodon.socialS This user is from outside of this forum
      stevebrady@mastodon.socialS This user is from outside of this forum
      stevebrady@mastodon.social
      wrote last edited by
      #38

      @KatyElphinstone
      I don't think of my deeper self as autistic, but it isn't NT either.
      Kinda like, underneath their small talk and their fibbing, NT people can have a deeper self that isn't NT.

      1 Reply Last reply
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      • katyelphinstone@mas.toK This user is from outside of this forum
        katyelphinstone@mas.toK This user is from outside of this forum
        katyelphinstone@mas.to
        wrote last edited by
        #39

        @Susan60

        Yes... the extremes. Exactly this. 😵‍💫

        @jmcclure

        1 Reply Last reply
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        • seconduniverse@autistics.lifeS seconduniverse@autistics.life

          @KatyElphinstone I like being autistic, even though it is very difficult. I don't want to be "cured".

          Same thing: I like being trans. My life is better for being trans than it would have been if my parents had given me a detrans pill when I was a toddler.

          Same thing: I have psychotic experiences, and I have tried so hard for so long to cure them. But I realize now that the real problem was my war against the experiences - the rejection of them, the fight to be "sane", the insistence on seeing myself as broken.

          Diversity has value - both for society and spiritually for the individual.

          katyelphinstone@mas.toK This user is from outside of this forum
          katyelphinstone@mas.toK This user is from outside of this forum
          katyelphinstone@mas.to
          wrote last edited by
          #40

          @SecondUniverse

          Thanks for sharing this, it's beautiful.

          1 Reply Last reply
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          • panda@assemblag.esP panda@assemblag.es

            @KatyElphinstone Often called the ‘Autism Industrial Complex’.

            katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.to
            wrote last edited by
            #41

            @panda

            Indeed! I'm glad you've seen this.

            1 Reply Last reply
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            • go_shrumm@scicomm.xyzG This user is from outside of this forum
              go_shrumm@scicomm.xyzG This user is from outside of this forum
              go_shrumm@scicomm.xyz
              wrote last edited by
              #42

              @boiga @KatyElphinstone

              Oh yes!

              Though I learned to accept this over the decades I know that this - at least for me - is a real disability because success in society is bound to connection much more than to technical skill or talent. I can literally tell the countless situations where I was either too „shy“ or „cold“ or too „arrogant“ and a whole future disappeared. (I have experience of 60+ years …)

              1 Reply Last reply
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              • greenroc@mastodon.socialG greenroc@mastodon.social

                @tursiops Yeah, I feel better if I am accepted.

                Unlike your situation, I tell someone to stop something, and they double down and do more of it. Meltdown of sensory overload then happens.

                My two friends will stop what they are doing if I ask them to, and they also warn me when they are about to make some noises, and tell me what a noise is if I ask, "what was that?" good friends ❤

                tursiops@tooting.chT This user is from outside of this forum
                tursiops@tooting.chT This user is from outside of this forum
                tursiops@tooting.ch
                wrote last edited by
                #43

                @GreenRoc as a good oversharer I do that via email with all possible details, I remember I sent my old boss the equivalent of a two pages email and only got back a it’s all very clear now, or something like that. So there’s that

                1 Reply Last reply
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                • katyelphinstone@mas.toK This user is from outside of this forum
                  katyelphinstone@mas.toK This user is from outside of this forum
                  katyelphinstone@mas.to
                  wrote last edited by
                  #44

                  @lispi314

                  Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

                  @jens

                  jens@social.finkhaeuser.deJ 1 Reply Last reply
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                  • katyelphinstone@mas.toK This user is from outside of this forum
                    katyelphinstone@mas.toK This user is from outside of this forum
                    katyelphinstone@mas.to
                    wrote last edited by
                    #45

                    @gunchleoc

                    Nope. So clearly they're fine.

                    @jens

                    1 Reply Last reply
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                    • katyelphinstone@mas.toK katyelphinstone@mas.to

                      @lispi314

                      Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

                      @jens

                      jens@social.finkhaeuser.deJ This user is from outside of this forum
                      jens@social.finkhaeuser.deJ This user is from outside of this forum
                      jens@social.finkhaeuser.de
                      wrote last edited by
                      #46

                      @KatyElphinstone @lispi314 It's weird, yes, but also easily explained. At least in the West, people have believed for two thousand years that they were meant to rule over the animal kingdom, not be part of it. Says so in the bible!

                      1 Reply Last reply
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                      • katyelphinstone@mas.toK katyelphinstone@mas.to

                        Most autistic people, despite everything, actually like being autistic.

                        Not all, of course. But most of us.
                        And I don’t just mean ‘making peace with it’.

                        I mean: it's bound up with who we are.

                        A thread 🧵

                        1/11

                        (refs at the end)
                        #Autism #ActuallyAutistic #Neurodivergent

                        katzenmann@c3d2.socialK This user is from outside of this forum
                        katzenmann@c3d2.socialK This user is from outside of this forum
                        katzenmann@c3d2.social
                        wrote last edited by
                        #47

                        @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                        I really like being autistic.

                        wakame@tech.lgbtW 1 Reply Last reply
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                        • shinybat@zeroes.caS shinybat@zeroes.ca

                          @jmcclure @KatyElphinstone Similarly, I wouldn't want to change my general brain operating system - or perhaps more accurately can't imagine what it'd be like to have a different one! - but wish I didn't get so easily overloaded by light and sound 😭🦇😭

                          adelinej@piaille.frA This user is from outside of this forum
                          adelinej@piaille.frA This user is from outside of this forum
                          adelinej@piaille.fr
                          wrote last edited by
                          #48

                          @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                          @jmcclure @KatyElphinstone

                          katyelphinstone@mas.toK 1 Reply Last reply
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                          • adelinej@piaille.frA adelinej@piaille.fr

                            @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                            @jmcclure @KatyElphinstone

                            katyelphinstone@mas.toK This user is from outside of this forum
                            katyelphinstone@mas.toK This user is from outside of this forum
                            katyelphinstone@mas.to
                            wrote last edited by
                            #49

                            @adelinej

                            Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                            @shinybat @jmcclure

                            adelinej@piaille.frA 1 Reply Last reply
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                            • katzenmann@c3d2.socialK katzenmann@c3d2.social

                              @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                              I really like being autistic.

                              wakame@tech.lgbtW This user is from outside of this forum
                              wakame@tech.lgbtW This user is from outside of this forum
                              wakame@tech.lgbt
                              wrote last edited by
                              #50

                              @katzenmann @KatyElphinstone

                              Autism without ADHD is like lemon ice cream without chocolate sauce.

                              minego@pdx.socialM 1 Reply Last reply
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                              • katyelphinstone@mas.toK katyelphinstone@mas.to

                                @adelinej

                                Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                                @shinybat @jmcclure

                                adelinej@piaille.frA This user is from outside of this forum
                                adelinej@piaille.frA This user is from outside of this forum
                                adelinej@piaille.fr
                                wrote last edited by
                                #51

                                @KatyElphinstone As I was mentioning in my answer yesterday autism is my DNA…

                                The rare mutation genetic I have probably inherited from my dad, as I have like him macrocephaly, can also be linked to autism amid others things like the cancerS risks. 🫣🫠

                                —-

                                PTEN Gene and Autism: Genetic Underpinnings and Neurodevelopmental Impacts

                                Access Denied

                                favicon

                                (www.mdpi.com)

                                @shinybat @jmcclure

                                katyelphinstone@mas.toK 1 Reply Last reply
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                                • katyelphinstone@mas.toK katyelphinstone@mas.to

                                  If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

                                  That isn’t neutral.
                                  It's chilling. 😨

                                  11/11

                                  End of 🧵

                                  Refs in link below 👇

                                  hauchvonstaub@nrw.socialH This user is from outside of this forum
                                  hauchvonstaub@nrw.socialH This user is from outside of this forum
                                  hauchvonstaub@nrw.social
                                  wrote last edited by
                                  #52

                                  @KatyElphinstone
                                  I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                                  It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                                  1/

                                  hauchvonstaub@nrw.socialH 1 Reply Last reply
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                                  • hauchvonstaub@nrw.socialH hauchvonstaub@nrw.social

                                    @KatyElphinstone
                                    I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                                    It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                                    1/

                                    hauchvonstaub@nrw.socialH This user is from outside of this forum
                                    hauchvonstaub@nrw.socialH This user is from outside of this forum
                                    hauchvonstaub@nrw.social
                                    wrote last edited by
                                    #53

                                    @KatyElphinstone
                                    Complaining about how allistic people act, but then wishing to become one of them means wanting to just be on the other side of mistreatment and opression.
                                    Just wanting to be the perpetrator instead of the victim.

                                    It's likely partially that lack of self-awareness, that makes people like this so "unpopular" and to many unlikable, not just the autism.

                                    People like that would probably still be miserable and self-hating, if they could become allistic.

                                    2/

                                    hauchvonstaub@nrw.socialH katyelphinstone@mas.toK 2 Replies Last reply
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                                    • leonavis@mountains.socialL This user is from outside of this forum
                                      leonavis@mountains.socialL This user is from outside of this forum
                                      leonavis@mountains.social
                                      wrote last edited by
                                      #54

                                      @lispi314 of course humans are animals.

                                      1 Reply Last reply
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                                      • hauchvonstaub@nrw.socialH hauchvonstaub@nrw.social

                                        @KatyElphinstone
                                        Complaining about how allistic people act, but then wishing to become one of them means wanting to just be on the other side of mistreatment and opression.
                                        Just wanting to be the perpetrator instead of the victim.

                                        It's likely partially that lack of self-awareness, that makes people like this so "unpopular" and to many unlikable, not just the autism.

                                        People like that would probably still be miserable and self-hating, if they could become allistic.

                                        2/

                                        hauchvonstaub@nrw.socialH This user is from outside of this forum
                                        hauchvonstaub@nrw.socialH This user is from outside of this forum
                                        hauchvonstaub@nrw.social
                                        wrote last edited by
                                        #55

                                        @KatyElphinstone
                                        If you could "change your neurotype", people like that could become the equivalent of people who become addicted to plastic surgery, because it's never enough and the problem lies somewhere else (at least until they could change the part of their brain that makes them lack self-awareness and makes them narrow minded).

                                        But it is this lack of self-awareness, that makes a productive discussion impossible, so I usually don't try to change their view on the matter.

                                        3/3

                                        1 Reply Last reply
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                                        • katyelphinstone@mas.toK katyelphinstone@mas.to

                                          If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

                                          That isn’t neutral.
                                          It's chilling. 😨

                                          11/11

                                          End of 🧵

                                          Refs in link below 👇

                                          ginevracat@toot.communityG This user is from outside of this forum
                                          ginevracat@toot.communityG This user is from outside of this forum
                                          ginevracat@toot.community
                                          wrote last edited by
                                          #56

                                          @KatyElphinstone You have once again nailed the subtext of the research. Unfortunately.

                                          katyelphinstone@mas.toK 1 Reply Last reply
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