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  3. Most autistic people, despite everything, actually like being autistic.

Most autistic people, despite everything, actually like being autistic.

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neurodivergentactuallyautistiautism
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  • katyelphinstone@mas.toK katyelphinstone@mas.to

    If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

    That isn’t neutral.
    It's chilling. 😨

    11/11

    End of 🧵

    Refs in link below 👇

    minego@pdx.socialM This user is from outside of this forum
    minego@pdx.socialM This user is from outside of this forum
    minego@pdx.social
    wrote last edited by
    #35

    @KatyElphinstone A cure isn't possible. That would be death.

    I hate my anxiety, and EDS. I hate delays processing my emotions, and difficulty recognizing them...

    But I like me, and wouldn't change that for anything, and I am autistic.

    1 Reply Last reply
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    • greenroc@mastodon.socialG greenroc@mastodon.social

      @KatyElphinstone I'm autistic. I like being autistic. I have skills that most people dont have.

      What hurts me is the distain most people have for autism, and try to change me, boss me around, and do anything they feel will motivate me to be doing something I dont want to be doing, because "everyone does it"

      I am not like most people.
      I want people to appreciate me for who I am, different, not deficit.

      Society's general perception of autism is the problem, not me.

      gekitsu@toot.catG This user is from outside of this forum
      gekitsu@toot.catG This user is from outside of this forum
      gekitsu@toot.cat
      wrote last edited by
      #36

      @GreenRoc @KatyElphinstone yes! couldn’t have said it better – problems with my autism are overwhelmingly the problems other people have with it and insist on inflicting on me.

      1 Reply Last reply
      0
      • katyelphinstone@mas.toK katyelphinstone@mas.to

        There is, quite literally, an Autism Investor Summit – where autism services are discussed in terms of market growth and M&A.

        So yes.

        Autism is also a business model.
        (refs at the end)

        9/11

        panda@assemblag.esP This user is from outside of this forum
        panda@assemblag.esP This user is from outside of this forum
        panda@assemblag.es
        wrote last edited by
        #37

        @KatyElphinstone Often called the ‘Autism Industrial Complex’.

        katyelphinstone@mas.toK 1 Reply Last reply
        0
        • katyelphinstone@mas.toK katyelphinstone@mas.to

          That idea – that there’s a separable ‘pure self’ – is basically not one that's shared by us.

          But it's very popular elsewhere!

          Many millions are poured into #autism research every year, in the areas of treatment, intervention, prevention, and the hunt for biomarkers.

          💰💰💰

          3/11

          stevebrady@mastodon.socialS This user is from outside of this forum
          stevebrady@mastodon.socialS This user is from outside of this forum
          stevebrady@mastodon.social
          wrote last edited by
          #38

          @KatyElphinstone
          I don't think of my deeper self as autistic, but it isn't NT either.
          Kinda like, underneath their small talk and their fibbing, NT people can have a deeper self that isn't NT.

          1 Reply Last reply
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          • katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.toK This user is from outside of this forum
            katyelphinstone@mas.to
            wrote last edited by
            #39

            @Susan60

            Yes... the extremes. Exactly this. 😵‍💫

            @jmcclure

            1 Reply Last reply
            0
            • seconduniverse@autistics.lifeS seconduniverse@autistics.life

              @KatyElphinstone I like being autistic, even though it is very difficult. I don't want to be "cured".

              Same thing: I like being trans. My life is better for being trans than it would have been if my parents had given me a detrans pill when I was a toddler.

              Same thing: I have psychotic experiences, and I have tried so hard for so long to cure them. But I realize now that the real problem was my war against the experiences - the rejection of them, the fight to be "sane", the insistence on seeing myself as broken.

              Diversity has value - both for society and spiritually for the individual.

              katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.to
              wrote last edited by
              #40

              @SecondUniverse

              Thanks for sharing this, it's beautiful.

              1 Reply Last reply
              0
              • panda@assemblag.esP panda@assemblag.es

                @KatyElphinstone Often called the ‘Autism Industrial Complex’.

                katyelphinstone@mas.toK This user is from outside of this forum
                katyelphinstone@mas.toK This user is from outside of this forum
                katyelphinstone@mas.to
                wrote last edited by
                #41

                @panda

                Indeed! I'm glad you've seen this.

                1 Reply Last reply
                0
                • go_shrumm@scicomm.xyzG This user is from outside of this forum
                  go_shrumm@scicomm.xyzG This user is from outside of this forum
                  go_shrumm@scicomm.xyz
                  wrote last edited by
                  #42

                  @boiga @KatyElphinstone

                  Oh yes!

                  Though I learned to accept this over the decades I know that this - at least for me - is a real disability because success in society is bound to connection much more than to technical skill or talent. I can literally tell the countless situations where I was either too „shy“ or „cold“ or too „arrogant“ and a whole future disappeared. (I have experience of 60+ years …)

                  1 Reply Last reply
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                  • greenroc@mastodon.socialG greenroc@mastodon.social

                    @tursiops Yeah, I feel better if I am accepted.

                    Unlike your situation, I tell someone to stop something, and they double down and do more of it. Meltdown of sensory overload then happens.

                    My two friends will stop what they are doing if I ask them to, and they also warn me when they are about to make some noises, and tell me what a noise is if I ask, "what was that?" good friends ❤

                    tursiops@tooting.chT This user is from outside of this forum
                    tursiops@tooting.chT This user is from outside of this forum
                    tursiops@tooting.ch
                    wrote last edited by
                    #43

                    @GreenRoc as a good oversharer I do that via email with all possible details, I remember I sent my old boss the equivalent of a two pages email and only got back a it’s all very clear now, or something like that. So there’s that

                    1 Reply Last reply
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                    • katyelphinstone@mas.toK This user is from outside of this forum
                      katyelphinstone@mas.toK This user is from outside of this forum
                      katyelphinstone@mas.to
                      wrote last edited by
                      #44

                      @lispi314

                      Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

                      @jens

                      jens@social.finkhaeuser.deJ 1 Reply Last reply
                      0
                      • katyelphinstone@mas.toK This user is from outside of this forum
                        katyelphinstone@mas.toK This user is from outside of this forum
                        katyelphinstone@mas.to
                        wrote last edited by
                        #45

                        @gunchleoc

                        Nope. So clearly they're fine.

                        @jens

                        1 Reply Last reply
                        0
                        • katyelphinstone@mas.toK katyelphinstone@mas.to

                          @lispi314

                          Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

                          @jens

                          jens@social.finkhaeuser.deJ This user is from outside of this forum
                          jens@social.finkhaeuser.deJ This user is from outside of this forum
                          jens@social.finkhaeuser.de
                          wrote last edited by
                          #46

                          @KatyElphinstone @lispi314 It's weird, yes, but also easily explained. At least in the West, people have believed for two thousand years that they were meant to rule over the animal kingdom, not be part of it. Says so in the bible!

                          1 Reply Last reply
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                          • katyelphinstone@mas.toK katyelphinstone@mas.to

                            Most autistic people, despite everything, actually like being autistic.

                            Not all, of course. But most of us.
                            And I don’t just mean ‘making peace with it’.

                            I mean: it's bound up with who we are.

                            A thread 🧵

                            1/11

                            (refs at the end)
                            #Autism #ActuallyAutistic #Neurodivergent

                            katzenmann@c3d2.socialK This user is from outside of this forum
                            katzenmann@c3d2.socialK This user is from outside of this forum
                            katzenmann@c3d2.social
                            wrote last edited by
                            #47

                            @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                            I really like being autistic.

                            wakame@tech.lgbtW 1 Reply Last reply
                            0
                            • shinybat@zeroes.caS shinybat@zeroes.ca

                              @jmcclure @KatyElphinstone Similarly, I wouldn't want to change my general brain operating system - or perhaps more accurately can't imagine what it'd be like to have a different one! - but wish I didn't get so easily overloaded by light and sound 😭🦇😭

                              adelinej@piaille.frA This user is from outside of this forum
                              adelinej@piaille.frA This user is from outside of this forum
                              adelinej@piaille.fr
                              wrote last edited by
                              #48

                              @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                              @jmcclure @KatyElphinstone

                              katyelphinstone@mas.toK 1 Reply Last reply
                              0
                              • adelinej@piaille.frA adelinej@piaille.fr

                                @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                                @jmcclure @KatyElphinstone

                                katyelphinstone@mas.toK This user is from outside of this forum
                                katyelphinstone@mas.toK This user is from outside of this forum
                                katyelphinstone@mas.to
                                wrote last edited by
                                #49

                                @adelinej

                                Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                                @shinybat @jmcclure

                                adelinej@piaille.frA 1 Reply Last reply
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                                • katzenmann@c3d2.socialK katzenmann@c3d2.social

                                  @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                                  I really like being autistic.

                                  wakame@tech.lgbtW This user is from outside of this forum
                                  wakame@tech.lgbtW This user is from outside of this forum
                                  wakame@tech.lgbt
                                  wrote last edited by
                                  #50

                                  @katzenmann @KatyElphinstone

                                  Autism without ADHD is like lemon ice cream without chocolate sauce.

                                  minego@pdx.socialM 1 Reply Last reply
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                                  • katyelphinstone@mas.toK katyelphinstone@mas.to

                                    @adelinej

                                    Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                                    @shinybat @jmcclure

                                    adelinej@piaille.frA This user is from outside of this forum
                                    adelinej@piaille.frA This user is from outside of this forum
                                    adelinej@piaille.fr
                                    wrote last edited by
                                    #51

                                    @KatyElphinstone As I was mentioning in my answer yesterday autism is my DNA…

                                    The rare mutation genetic I have probably inherited from my dad, as I have like him macrocephaly, can also be linked to autism amid others things like the cancerS risks. 🫣🫠

                                    —-

                                    PTEN Gene and Autism: Genetic Underpinnings and Neurodevelopmental Impacts

                                    Access Denied

                                    favicon

                                    (www.mdpi.com)

                                    @shinybat @jmcclure

                                    katyelphinstone@mas.toK 1 Reply Last reply
                                    0
                                    • katyelphinstone@mas.toK katyelphinstone@mas.to

                                      If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

                                      That isn’t neutral.
                                      It's chilling. 😨

                                      11/11

                                      End of 🧵

                                      Refs in link below 👇

                                      hauchvonstaub@nrw.socialH This user is from outside of this forum
                                      hauchvonstaub@nrw.socialH This user is from outside of this forum
                                      hauchvonstaub@nrw.social
                                      wrote last edited by
                                      #52

                                      @KatyElphinstone
                                      I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                                      It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                                      1/

                                      hauchvonstaub@nrw.socialH 1 Reply Last reply
                                      0
                                      • hauchvonstaub@nrw.socialH hauchvonstaub@nrw.social

                                        @KatyElphinstone
                                        I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                                        It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                                        1/

                                        hauchvonstaub@nrw.socialH This user is from outside of this forum
                                        hauchvonstaub@nrw.socialH This user is from outside of this forum
                                        hauchvonstaub@nrw.social
                                        wrote last edited by
                                        #53

                                        @KatyElphinstone
                                        Complaining about how allistic people act, but then wishing to become one of them means wanting to just be on the other side of mistreatment and opression.
                                        Just wanting to be the perpetrator instead of the victim.

                                        It's likely partially that lack of self-awareness, that makes people like this so "unpopular" and to many unlikable, not just the autism.

                                        People like that would probably still be miserable and self-hating, if they could become allistic.

                                        2/

                                        hauchvonstaub@nrw.socialH katyelphinstone@mas.toK 2 Replies Last reply
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                                        • leonavis@mountains.socialL This user is from outside of this forum
                                          leonavis@mountains.socialL This user is from outside of this forum
                                          leonavis@mountains.social
                                          wrote last edited by
                                          #54

                                          @lispi314 of course humans are animals.

                                          1 Reply Last reply
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