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  3. Most autistic people, despite everything, actually like being autistic.

Most autistic people, despite everything, actually like being autistic.

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neurodivergentactuallyautistiautism
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  • katyelphinstone@mas.toK This user is from outside of this forum
    katyelphinstone@mas.toK This user is from outside of this forum
    katyelphinstone@mas.to
    wrote last edited by
    #39

    @Susan60

    Yes... the extremes. Exactly this. 😵‍💫

    @jmcclure

    1 Reply Last reply
    0
    • seconduniverse@autistics.lifeS seconduniverse@autistics.life

      @KatyElphinstone I like being autistic, even though it is very difficult. I don't want to be "cured".

      Same thing: I like being trans. My life is better for being trans than it would have been if my parents had given me a detrans pill when I was a toddler.

      Same thing: I have psychotic experiences, and I have tried so hard for so long to cure them. But I realize now that the real problem was my war against the experiences - the rejection of them, the fight to be "sane", the insistence on seeing myself as broken.

      Diversity has value - both for society and spiritually for the individual.

      katyelphinstone@mas.toK This user is from outside of this forum
      katyelphinstone@mas.toK This user is from outside of this forum
      katyelphinstone@mas.to
      wrote last edited by
      #40

      @SecondUniverse

      Thanks for sharing this, it's beautiful.

      1 Reply Last reply
      0
      • panda@assemblag.esP panda@assemblag.es

        @KatyElphinstone Often called the ‘Autism Industrial Complex’.

        katyelphinstone@mas.toK This user is from outside of this forum
        katyelphinstone@mas.toK This user is from outside of this forum
        katyelphinstone@mas.to
        wrote last edited by
        #41

        @panda

        Indeed! I'm glad you've seen this.

        1 Reply Last reply
        0
        • go_shrumm@scicomm.xyzG This user is from outside of this forum
          go_shrumm@scicomm.xyzG This user is from outside of this forum
          go_shrumm@scicomm.xyz
          wrote last edited by
          #42

          @boiga @KatyElphinstone

          Oh yes!

          Though I learned to accept this over the decades I know that this - at least for me - is a real disability because success in society is bound to connection much more than to technical skill or talent. I can literally tell the countless situations where I was either too „shy“ or „cold“ or too „arrogant“ and a whole future disappeared. (I have experience of 60+ years …)

          1 Reply Last reply
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          • greenroc@mastodon.socialG greenroc@mastodon.social

            @tursiops Yeah, I feel better if I am accepted.

            Unlike your situation, I tell someone to stop something, and they double down and do more of it. Meltdown of sensory overload then happens.

            My two friends will stop what they are doing if I ask them to, and they also warn me when they are about to make some noises, and tell me what a noise is if I ask, "what was that?" good friends ❤

            tursiops@tooting.chT This user is from outside of this forum
            tursiops@tooting.chT This user is from outside of this forum
            tursiops@tooting.ch
            wrote last edited by
            #43

            @GreenRoc as a good oversharer I do that via email with all possible details, I remember I sent my old boss the equivalent of a two pages email and only got back a it’s all very clear now, or something like that. So there’s that

            1 Reply Last reply
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            • katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.toK This user is from outside of this forum
              katyelphinstone@mas.to
              wrote last edited by
              #44

              @lispi314

              Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

              @jens

              jens@social.finkhaeuser.deJ 1 Reply Last reply
              0
              • katyelphinstone@mas.toK This user is from outside of this forum
                katyelphinstone@mas.toK This user is from outside of this forum
                katyelphinstone@mas.to
                wrote last edited by
                #45

                @gunchleoc

                Nope. So clearly they're fine.

                @jens

                1 Reply Last reply
                0
                • katyelphinstone@mas.toK katyelphinstone@mas.to

                  @lispi314

                  Indeed it is! My daughter's geography teacher told her yesterday that humans aren't animals. Er... 🤷‍♀️

                  @jens

                  jens@social.finkhaeuser.deJ This user is from outside of this forum
                  jens@social.finkhaeuser.deJ This user is from outside of this forum
                  jens@social.finkhaeuser.de
                  wrote last edited by
                  #46

                  @KatyElphinstone @lispi314 It's weird, yes, but also easily explained. At least in the West, people have believed for two thousand years that they were meant to rule over the animal kingdom, not be part of it. Says so in the bible!

                  1 Reply Last reply
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                  • katyelphinstone@mas.toK katyelphinstone@mas.to

                    Most autistic people, despite everything, actually like being autistic.

                    Not all, of course. But most of us.
                    And I don’t just mean ‘making peace with it’.

                    I mean: it's bound up with who we are.

                    A thread 🧵

                    1/11

                    (refs at the end)
                    #Autism #ActuallyAutistic #Neurodivergent

                    katzenmann@c3d2.socialK This user is from outside of this forum
                    katzenmann@c3d2.socialK This user is from outside of this forum
                    katzenmann@c3d2.social
                    wrote last edited by
                    #47

                    @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                    I really like being autistic.

                    wakame@tech.lgbtW 1 Reply Last reply
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                    • shinybat@zeroes.caS shinybat@zeroes.ca

                      @jmcclure @KatyElphinstone Similarly, I wouldn't want to change my general brain operating system - or perhaps more accurately can't imagine what it'd be like to have a different one! - but wish I didn't get so easily overloaded by light and sound 😭🦇😭

                      adelinej@piaille.frA This user is from outside of this forum
                      adelinej@piaille.frA This user is from outside of this forum
                      adelinej@piaille.fr
                      wrote last edited by
                      #48

                      @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                      @jmcclure @KatyElphinstone

                      katyelphinstone@mas.toK 1 Reply Last reply
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                      • adelinej@piaille.frA adelinej@piaille.fr

                        @shinybat Same for the overloaded part + for my specific situation, my risks of having 7 different kinds of cancerS (already got the same two times) as everything is linked to my rare genetic mutation.

                        @jmcclure @KatyElphinstone

                        katyelphinstone@mas.toK This user is from outside of this forum
                        katyelphinstone@mas.toK This user is from outside of this forum
                        katyelphinstone@mas.to
                        wrote last edited by
                        #49

                        @adelinej

                        Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                        @shinybat @jmcclure

                        adelinej@piaille.frA 1 Reply Last reply
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                        • katzenmann@c3d2.socialK katzenmann@c3d2.social

                          @KatyElphinstone I would give away my ADHD but I'm clinging onto my Autism and would defend it with my life.

                          I really like being autistic.

                          wakame@tech.lgbtW This user is from outside of this forum
                          wakame@tech.lgbtW This user is from outside of this forum
                          wakame@tech.lgbt
                          wrote last edited by
                          #50

                          @katzenmann @KatyElphinstone

                          Autism without ADHD is like lemon ice cream without chocolate sauce.

                          minego@pdx.socialM 1 Reply Last reply
                          0
                          • katyelphinstone@mas.toK katyelphinstone@mas.to

                            @adelinej

                            Woah. That is such a lot to be carrying 😵‍💫❤️🫂

                            @shinybat @jmcclure

                            adelinej@piaille.frA This user is from outside of this forum
                            adelinej@piaille.frA This user is from outside of this forum
                            adelinej@piaille.fr
                            wrote last edited by
                            #51

                            @KatyElphinstone As I was mentioning in my answer yesterday autism is my DNA…

                            The rare mutation genetic I have probably inherited from my dad, as I have like him macrocephaly, can also be linked to autism amid others things like the cancerS risks. 🫣🫠

                            —-

                            PTEN Gene and Autism: Genetic Underpinnings and Neurodevelopmental Impacts

                            Access Denied

                            favicon

                            (www.mdpi.com)

                            @shinybat @jmcclure

                            katyelphinstone@mas.toK 1 Reply Last reply
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                            • katyelphinstone@mas.toK katyelphinstone@mas.to

                              If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

                              That isn’t neutral.
                              It's chilling. 😨

                              11/11

                              End of 🧵

                              Refs in link below 👇

                              hauchvonstaub@nrw.socialH This user is from outside of this forum
                              hauchvonstaub@nrw.socialH This user is from outside of this forum
                              hauchvonstaub@nrw.social
                              wrote last edited by
                              #52

                              @KatyElphinstone
                              I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                              It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                              1/

                              hauchvonstaub@nrw.socialH 1 Reply Last reply
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                              • hauchvonstaub@nrw.socialH hauchvonstaub@nrw.social

                                @KatyElphinstone
                                I've never heard from to an autistic person who wanted a "cure" who didn't seem to lack self-awareness or at least a nuanced view on autism.

                                It's one thing to suffere from a sensory experience so much, that you'd rather be a different person than to continue suffering, the same goes for loneliness, but some people act, like between autistic and allistic, there is a secret third option, or worse, they'd rather be the kind of person they complain about for others.

                                1/

                                hauchvonstaub@nrw.socialH This user is from outside of this forum
                                hauchvonstaub@nrw.socialH This user is from outside of this forum
                                hauchvonstaub@nrw.social
                                wrote last edited by
                                #53

                                @KatyElphinstone
                                Complaining about how allistic people act, but then wishing to become one of them means wanting to just be on the other side of mistreatment and opression.
                                Just wanting to be the perpetrator instead of the victim.

                                It's likely partially that lack of self-awareness, that makes people like this so "unpopular" and to many unlikable, not just the autism.

                                People like that would probably still be miserable and self-hating, if they could become allistic.

                                2/

                                hauchvonstaub@nrw.socialH katyelphinstone@mas.toK 2 Replies Last reply
                                0
                                • leonavis@mountains.socialL This user is from outside of this forum
                                  leonavis@mountains.socialL This user is from outside of this forum
                                  leonavis@mountains.social
                                  wrote last edited by
                                  #54

                                  @lispi314 of course humans are animals.

                                  1 Reply Last reply
                                  0
                                  • hauchvonstaub@nrw.socialH hauchvonstaub@nrw.social

                                    @KatyElphinstone
                                    Complaining about how allistic people act, but then wishing to become one of them means wanting to just be on the other side of mistreatment and opression.
                                    Just wanting to be the perpetrator instead of the victim.

                                    It's likely partially that lack of self-awareness, that makes people like this so "unpopular" and to many unlikable, not just the autism.

                                    People like that would probably still be miserable and self-hating, if they could become allistic.

                                    2/

                                    hauchvonstaub@nrw.socialH This user is from outside of this forum
                                    hauchvonstaub@nrw.socialH This user is from outside of this forum
                                    hauchvonstaub@nrw.social
                                    wrote last edited by
                                    #55

                                    @KatyElphinstone
                                    If you could "change your neurotype", people like that could become the equivalent of people who become addicted to plastic surgery, because it's never enough and the problem lies somewhere else (at least until they could change the part of their brain that makes them lack self-awareness and makes them narrow minded).

                                    But it is this lack of self-awareness, that makes a productive discussion impossible, so I usually don't try to change their view on the matter.

                                    3/3

                                    1 Reply Last reply
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                                    • katyelphinstone@mas.toK katyelphinstone@mas.to

                                      If autistic people are saying ‘this is part of who I am’ and the response is to continue to fund ways to reduce and eliminate autism, while making very sure our voices are not heard.

                                      That isn’t neutral.
                                      It's chilling. 😨

                                      11/11

                                      End of 🧵

                                      Refs in link below 👇

                                      ginevracat@toot.communityG This user is from outside of this forum
                                      ginevracat@toot.communityG This user is from outside of this forum
                                      ginevracat@toot.community
                                      wrote last edited by
                                      #56

                                      @KatyElphinstone You have once again nailed the subtext of the research. Unfortunately.

                                      katyelphinstone@mas.toK 1 Reply Last reply
                                      0
                                      • katyelphinstone@mas.toK katyelphinstone@mas.to

                                        Because a ‘world without autism’ isn't abstract.
                                        It's a world without autistic people. 🙎🏽‍♀️🙎🏾🙎🏻‍♀️

                                        There’s also a deeper issue here.

                                        Autistic people aren't believed about our own experiences. Or we don't get asked at all.

                                        #UtaFrith said it would be unscientific to do so. More on her views here: https://mas.to/@KatyElphinstone/116206483353899881

                                        5/11

                                        dedicto@zeroes.caD This user is from outside of this forum
                                        dedicto@zeroes.caD This user is from outside of this forum
                                        dedicto@zeroes.ca
                                        wrote last edited by
                                        #57

                                        @KatyElphinstone Have you seen this response to that whole line of thought? "Anti-ableism and scientific accuracy in autism research: a false dichotomy" (Morton Ann #Gernsbacher is one of the authors):

                                        Link Preview Image
                                        Anti-ableism and scientific accuracy in autism research: a false dichotomy - PubMed

                                        It was recently argued that autism researchers committed to rejecting ableist frameworks in their research may sacrifice "scientifically accurate" conceptualizations of autism. In this perspective piece, we argue that: (a) anti-ableism vs. scientific accuracy is a false dichotomy, (b) there is no id …

                                        favicon

                                        PubMed (pubmed.ncbi.nlm.nih.gov)

                                        katyelphinstone@mas.toK 1 Reply Last reply
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                                        • orb2069@mastodon.onlineO orb2069@mastodon.online

                                          @KatyElphinstone

                                          Looking into the origin of the phrase 'high functioning autistic' really opened my eyes. They want what they can use.

                                          seconduniverse@autistics.lifeS This user is from outside of this forum
                                          seconduniverse@autistics.lifeS This user is from outside of this forum
                                          seconduniverse@autistics.life
                                          wrote last edited by
                                          #58

                                          @Orb2069 @KatyElphinstone what was the origin? When I'm told that phrase I feel so deflated.

                                          orb2069@mastodon.onlineO 1 Reply Last reply
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