Skip to content
  • ME Research UK:

    Uncategorized pem mecfs cfs pwme
    2
    0 Votes
    2 Posts
    4 Views
    robotistry@mstdn.caR
    @tomkindlon @mecfs Would once again like to reiterate how much I LOATHE these questions.I do not get "mentally tired after the slightest effort".I get "flu-like symptoms two to three days after exceeding my cognitive activity threshold". Sometimes that threshold is actual tiny effort like "I read three posts on my support group" but sometimes it's "read a book on my phone for more than 45 minutes" or "reviewed a technical paper" or "programmed for 15 minutes" or "programmed for an hour".Unless you're going to define "the slightest effort" and "mentally tired" you will be completely incapable of differentiating between "I can't spend an hour responding to email without getting tired so I said yes" and "Cognitive exertion doesn't make me mentally tired so I said no even though my current threshold for avoiding flu-like symptoms is 15 minutes of texting."Grrr.
  • 0 Votes
    3 Posts
    0 Views
    tomkindlon@disabled.socialT
    3/More from a series of comic strips about life as a person with ME/CFS."George and His ME/CFS"Rick Menard#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
  • 0 Votes
    1 Posts
    5 Views
    tomkindlon@disabled.socialT
    37-minute video: "The Biology of Post-Infectious Chronic Illness" with Dr. Anthony L. Komaroffhttps://www.youtube.com/watch?v=u282aUTpyIAI haven't watched so far but he is usually good in these videos#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid 1/
  • 0 Votes
    1 Posts
    6 Views
    thesunnyone@eldritch.cafeT
    I, personally, don't think the author goes hard enough on the guy (and the industry he's in) selling "think positively" as a treatment for #MECFSEspecially considering she admits that the "brain retraining" took about as long to work as *not* doing that (ie, a placebo), and the guy she paid for that placebo was an engineer, not a medical professional.But still an ok read of what ME/CFS can be like.Original post I saw this:https://mastodon.ie/@swoonie/116130323587022897Article without the "accept all cookies or pay for a subscription" wall:https://www.removepaywall.com/search?url=https://www.theguardian.com/society/2026/feb/24/my-maddening-battle-with-chronic-fatigue-syndrome-on-my-worst-days-it-feels-almost-demonic#NEISvoid #LongCovid #pwME