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CIRCLE WITH A DOT

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  3. ME Research UK:

ME Research UK:

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pemmecfscfspwme
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  • tomkindlon@disabled.socialT This user is from outside of this forum
    tomkindlon@disabled.socialT This user is from outside of this forum
    tomkindlon@disabled.social
    wrote last edited by
    #1

    ME Research UK:

    To try and obtain a better understanding of post exertional malasie, a group of researchers – including Professor Leonard Jason – considered whether there might be distinct subtypes.

    Read more about what they found here: https://bit.ly/4r6otTG

    #PEM #MEcfs #CFS #PwME @mecfs

    robotistry@mstdn.caR 1 Reply Last reply
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    • tomkindlon@disabled.socialT tomkindlon@disabled.social

      ME Research UK:

      To try and obtain a better understanding of post exertional malasie, a group of researchers – including Professor Leonard Jason – considered whether there might be distinct subtypes.

      Read more about what they found here: https://bit.ly/4r6otTG

      #PEM #MEcfs #CFS #PwME @mecfs

      robotistry@mstdn.caR This user is from outside of this forum
      robotistry@mstdn.caR This user is from outside of this forum
      robotistry@mstdn.ca
      wrote last edited by
      #2

      @tomkindlon @mecfs Would once again like to reiterate how much I LOATHE these questions.

      I do not get "mentally tired after the slightest effort".

      I get "flu-like symptoms two to three days after exceeding my cognitive activity threshold". Sometimes that threshold is actual tiny effort like "I read three posts on my support group" but sometimes it's "read a book on my phone for more than 45 minutes" or "reviewed a technical paper" or "programmed for 15 minutes" or "programmed for an hour".

      Unless you're going to define "the slightest effort" and "mentally tired" you will be completely incapable of differentiating between "I can't spend an hour responding to email without getting tired so I said yes" and "Cognitive exertion doesn't make me mentally tired so I said no even though my current threshold for avoiding flu-like symptoms is 15 minutes of texting."

      Grrr.

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