New blog post:
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@82mhz
From all the reports on living with ME/CFS I have heard of so far, yours is most similar to my own history. Thanks for the level description and for relaying how you don't totally despair but rather have a life that is somehow still worth living. Heartfelt sympathies. -
@82mhz oh wow, that's wild 🫢
I'd only heard about CFS after the pandemic, but never really dug into it, thanks for sharing your lived experience.A bit lost for words somehow, but your account, and that Austrian girl's story, really make it obvious that there are way more things than one would think out there, where our current healthcare systems are at an absolute loss.
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@82mhz Thanks for writing this article. It helps to understand the whole thing and the state of research today.
And there will better days, out of this syndrome
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@82mhz this was such a great read and I'm so glad you wrote it. It's tough to write things about our vulnerability and you've done it so well here. Also, your writing is gripping and interesting, I couldn't even stop reading it. Fascinating. And awful. It's good to remember for everyone-- as we're all going through our own stuff.
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@82mhz thank you for sharing! Your attitude of gratitude is inspiring.
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@82mhz your post is fantastic. While it might sound unbelievable to some, those who suffer from or live near someone who does will completely understand. Thank you for raising awareness about this.
@stefano
Thank you Stefano for reading and for the kind words!
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@82mhz this was such a great read and I'm so glad you wrote it. It's tough to write things about our vulnerability and you've done it so well here. Also, your writing is gripping and interesting, I couldn't even stop reading it. Fascinating. And awful. It's good to remember for everyone-- as we're all going through our own stuff.
@jake4480
Thanks Jake for the kind words! It was tough writing it, because as you say, it's showing a very vulerable side to the public. But I think it's worth it, and responses like yours show me that it is.Thanks again!
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@82mhz Thanks for writing this article. It helps to understand the whole thing and the state of research today.
And there will better days, out of this syndrome@EnigmaRotor Thank you! Yes, better days are coming for sure. Thanks for reading!
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@82mhz
From all the reports on living with ME/CFS I have heard of so far, yours is most similar to my own history. Thanks for the level description and for relaying how you don't totally despair but rather have a life that is somehow still worth living. Heartfelt sympathies.@snippet
Thanks! Do you have the same thing? In this case my sympathies go right back to you! You're up in Thüringen, I'm in Bayern, so we're almost neighbors
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@82mhz oh wow, that's wild 🫢
I'd only heard about CFS after the pandemic, but never really dug into it, thanks for sharing your lived experience.A bit lost for words somehow, but your account, and that Austrian girl's story, really make it obvious that there are way more things than one would think out there, where our current healthcare systems are at an absolute loss.
@ttntm
Thanks Tom! Yeah, there are still many diseases for which there is no cure or treatment available, unfortunately... but medical research is always progressing, so there is hope.Thanks for reading and getting in touch!
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@82mhz thank you for sharing! Your attitude of gratitude is inspiring.
@marios Thank you very much!
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@afb Thank you!
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I appreciate your detailed description of what CFS is like. I did not have a real picture of what people go through in the process of diagnosis and trying to manage life with it. Your post has made more room in my heart with the awareness it brings.
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I appreciate your detailed description of what CFS is like. I did not have a real picture of what people go through in the process of diagnosis and trying to manage life with it. Your post has made more room in my heart with the awareness it brings.
@ajlewis2 Thank you for the kind words, Anita!
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@82mhz Hey, thank you for the informative and hopeful account of your experience. Chronic conditions are tough, especially when they aren't fully known or researched.
Love your positive attitude! All the best
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@82mhz Hey, thank you for the informative and hopeful account of your experience. Chronic conditions are tough, especially when they aren't fully known or researched.
Love your positive attitude! All the best@noisydeadlines
Thank you! -
@82mhz Great write up! You've at least quadrupled what I knew of ME/CFS, which was admittedly not very much. I'm sorry you're going through it.
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@82mhz Great write up! You've at least quadrupled what I knew of ME/CFS, which was admittedly not very much. I'm sorry you're going through it.
@stardot
Thanks Dave! If you took something away from it, then mission accomplished -
@snippet
Thanks! Do you have the same thing? In this case my sympathies go right back to you! You're up in Thüringen, I'm in Bayern, so we're almost neighbors@82mhz
Same thing, I have CFS symptoms since 11 years, with better times and worse times. The last two years were worse after a Covid infection. You could come by for a coffee, but I Iive in the very north-western part of Thuringia, almost Lower Saxony.
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R relay@relay.mycrowd.ca shared this topic
