Well, if it's long COVID awareness day, I'll add my ten cents.

[lhgmk2@mas.to]

@treleanor coo, get you with your luxury items. Yeah, all apnea sucks. I do sympathise.

I recorded myself to see how bad it was, I don't even snore. My body just forgets to use my nose when allergies hit in my sleep and my mouth doesn't open. I just choke. My autonomous functions are broken. I now have to make sure my nose can always work and take meds to keep it open. Ridiculous situation.

[lhgmk2@mas.to]

@treleanor I had to come off pills to help me sleep a while back because I had flu, and I couldn't afford deep sleep in case I suffocated. This shit genuinely sucks.

I'm genuinely a bit scared of it, but it's now just instinctive fear, like of drowning, because after three years of it, it's got me miserable bored with it.

People wonder why I get moody

[lhgmk2@mas.to]

@treleanor I can't sleep near a time I've eaten because my sinuses swell for about two hours. I used to like eating and napping.

[secretsloth@mastodon.art]

@lhgmk2 and they don't know why, or what is or isn't actually long covid related. Things come and go and that makes doctors doubt us. But then again, I've just had a humdinger of a crash that like... I suspect something secondary is probably involved, but I didn't realize, because I thought it was just another long covid problem. And it could be! Who knows! Will the docs care? Who knows. Can they find out without killing me? Spin the wheel. Because I'm at the limit of what I can figure out.

[secretsloth@mastodon.art]

@lhgmk2 and there we have the flipside of the horror coin. We don't have the ability to leave these questions to out doctors because *they don't know,* even if they do listen. We have to figure this out ourselves, like, in our own bodies and also as a community, because doctors just seem to have thrown up their hands about it. And that. Just. Sucks. Even doctors aren't their own doctors. Nobody would want to be. But here we are. Horror upon horror upon horror.