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  3. Your Story Matters!

Your Story Matters!

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shareyourstorypkurarediseasedayrareaware
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  • poconnor@pkutalk.comP This user is from outside of this forum
    poconnor@pkutalk.comP This user is from outside of this forum
    poconnor@pkutalk.com
    wrote last edited by
    #1

    Your Story Matters!

    For Rare disease day, people with PKU are sharing their story.

    👧 Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced.

    🍫 Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health.

    📦️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym.

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    Your Story matters - Share your experience with PKU, rare conditions

    Your story matters. Share your experiences with PKU, Low Protein diets, or rare conditions and inspire others. Join the PigPen.page community today.

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    PigPen | Pauline O'Connor (www.pigpen.page)

    #ShareYourStory #PKU #RareDiseaseDay #RareAware

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