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    poconnor@pkutalk.comP
    Your Story Matters! For Rare disease day, people with PKU are sharing their story. Clair discusses parenting with PKU, when your child does not have PKU - and the interesting challenges she has faced. Ifan shares his experience navigating the manosphere, and what that meant for his PKU and mental health. ️ Soheb wrote a series of blogs for PigPen - looking at moving home with PKU, and getting into the gym. https://www.pigpen.page/share-your-story-2/#ShareYourStory #PKU #RareDiseaseDay #RareAware