Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit?
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@emilymbender I've noticed a lot of this use in veterinary medicine recently as well, just FYI.
@rbmath @emilymbender I have noticed this too, at my local vet. They have signs at the front desk and in all the rooms about it and letting people know they can opt out. One of the problems is how people tend to react when you say you want to opt out.
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@BoydStephenSmithJr That ... isn't really consent.
@emilymbender @BoydStephenSmithJr i actively refuse to go to a local provider chain because of the Terms of their EHR software. It basically kept the right to do what it wanted with data.
I always think of how few people would care enough to do that level of reading as well as have the education to catch the nuance and resources to choose another practice.
That is not to shame anyone! It is asking a lot of an individual to do that
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender i wrote a note to my medical clinic addressing similar concerns when i saw the ai sign in the office but i have medical anxiety and didn't feel up to addressing it at the time. the passive sign assumed consent. the office assistant replied and said they could put a permanent note on my chart that i did not consent to the ai scribe.
then the next time my doctor called, he acted like his feelings were hurt and he had thought i would have told him to his face, and then made me feel guilty about refusing the ai assistant due to his workload. now i'm feeling hesitant to see him even though he's my new doctor that i liked
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@randocity @emilymbender I am in zcanada. No HIPAa, but we do tend to go where the US goes on a lot of things.
@commonst @randocity @emilymbender
Very definitely happening in Canada, too. Speech-to-text is not new, particularly in specialties like radiology, but until recently, those systems which had to be individually trained to each voice and pre-loaded with context and lexicon, were limited to clinician dictation.
At least my last specialist asked, identified that it was “AI” and purely for transcription, not summary or diagnostics. But I’m worried.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
That would have been useful to know last week. They totally deceived me, and said they were just recording the conversation. -
@emilymbender
Evidence shows litigation decrease if Drs have scribes. A Dr isn’t allowed to remember things in defence. It’s said “If it is not documented, it didn’t happen” even if it did happen & recall can be verified.The direct effect:
1: more litigation = more insurance cost for the Dr & thus higher consult fees.
2: Drs who have psychological & emotional injury from spurious claims reduce/stop practice.So there is high motivation for having a scribe.
As some others pointed out - that evidence is based on recorded encounters being transcribed by humans, or possibly by non-AI speech-to-text.
Nobody has yet studied the resulting practice effects of AI/LLM-based interpretation. Recording, transcription, and interpretation are separate realms and skill sets and “AI” is either unnecessary or unproven in all 3.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender @DevlinLeathercraft The orthopedic surgeon who will be taking care of my trigger thumb asked to record our last session. I can't remember whether I asked him if an AI was going to transcribe it, but I will next time.
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@WhiteCatTamer @EverydayMoggie @emilymbender In California, if you refuse, they are legally obligated not to record. California is a two-party consent state. You cannot record anyone's voice for any reason without their consent.
@EverydayMoggie @starluna @WhiteCatTamer @emilymbender enter smart glasses disruption
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@emilymbender My biggest concern is the potential for psychiatric violence. Inaccurate medical notes produced by these systems could very easily be used as evidence of psychosis or some other kind of psychopathology, leading to forced medical treatment. Having already experienced some of that system, it really worries me. I don’t let medical providers use these systems with me.
I just read (in a JAMA newsletter, I'll try to track it down -- it's not in my email or trash) about a Doctor who as been an early adapter. He did it "right", going over the notes in the evening to clean up the errors in transcription.
He found:
1) He could just focus on the patient, rather then the screen.
2) He got off track and was less focused, and spent more time with the patients without providing better information.
3) Most importantly, when someone came back 6 months later for a follow up, he realized that the notes were not that good. Accurate, but without insight -- they read like someone else had written them and did not help him recall what was going on. -
I just read (in a JAMA newsletter, I'll try to track it down -- it's not in my email or trash) about a Doctor who as been an early adapter. He did it "right", going over the notes in the evening to clean up the errors in transcription.
He found:
1) He could just focus on the patient, rather then the screen.
2) He got off track and was less focused, and spent more time with the patients without providing better information.
3) Most importantly, when someone came back 6 months later for a follow up, he realized that the notes were not that good. Accurate, but without insight -- they read like someone else had written them and did not help him recall what was going on. -
@M3L155A @meltedcheese @emilymbender For clarification, when I say that insurers aren’t deriving benefits from AI directly, I mean specifically the AI that’s being used in doctors offices, learning from patient recordings.
It is very possible, however, that insurance companies are using AI in their own internal systems, but those AI systems are entirely separate from AI used in doctor’s office patient systems.
@randocity @M3L155A @emilymbender For now, they are separate. What could possibly go wrong if they become part of automating the workflow between providers and insurance com? Quite a bit from the patients POV.
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That's it! Thanks, and clearly you've already seen it. And I miss remembered where I saw it.
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I've just passed your paper and Dr Gooch's along to the most recent Dr to ask me about using an AI scribe. Give them some heads up, as well as data when responding to management.
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@EverydayMoggie @starluna @WhiteCatTamer @emilymbender enter smart glasses disruption
I didn't notice any visible recording devices in the office. At the time I assumed this meant the recording capability was just software running on their existing medical computers, which would mean there was no simple way to see if it was recording you or not.
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I didn't notice any visible recording devices in the office. At the time I assumed this meant the recording capability was just software running on their existing medical computers, which would mean there was no simple way to see if it was recording you or not.
@EverydayMoggie @Kierkegaanks @WhiteCatTamer @emilymbender That is definitely what makes all of these tools problematic. I would like to believe that somebody in risk management has raised this flag, at least for the California medical facilities, but so many of those people are also captured by the AI hype that they've lost all of their critical faculties.
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@LPhilpott @emilymbender "Now, six weeks later, I was reading someone else’s account of a consultation I had conducted — and I couldn’t recall the patient clearly enough to reconstruct what had been left out."
This part struck me because I hadn't even considered the problems trying to use notes you didn't write. Its an extra chance for misunderstanding.
And the doc said the notes are accurate earlier in the piece, but here he admits he can't be sure about that.
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@emilymbender i wrote a note to my medical clinic addressing similar concerns when i saw the ai sign in the office but i have medical anxiety and didn't feel up to addressing it at the time. the passive sign assumed consent. the office assistant replied and said they could put a permanent note on my chart that i did not consent to the ai scribe.
then the next time my doctor called, he acted like his feelings were hurt and he had thought i would have told him to his face, and then made me feel guilty about refusing the ai assistant due to his workload. now i'm feeling hesitant to see him even though he's my new doctor that i liked
Guilting you is not a good sign. I clearly don't know all the facts, but trust your feelings and don't let someone pressure you.
You might send copies of Dr. Bender's and Dr Gooch's (elsewhere in this thread) essays to him and suggest you are trying to help him with his workload by not letting him get sucked into "AI" hype.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender Yes, and I certainly decline. Fortunately, I have a good relationship with my GP, so it hasn't been an issue so far.
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@P__X You are not restricted in space -- you wrote a whole thread.
My point is: if patients do not know what they are consenting to, it is not consent. If it is not possible in the context of the visit to convey the detail, then we shouldn't do the thing.
I encourage you to read the rest of the replies to my post, including the quotes, to see the lack of consent and how that is landing.
Frankly, I'm surprised & **disappointed** by your eagerness to jump to conclusions and make biased inferences. Eg: "an AI scribe will change how physicians speak", but *character limits don't impact how ppl write here*. Sets how seriously I should take this.
My inference: you've had minimal input from actual providers familiar w/ the app (point #4 and 7 were dead giveaways) or who spent >10,000 hours writing notes (even #9 seems to be from a non-provider).
No thank you.
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@countablenewt @emilymbender For longer than the technology has actually existed, I'll bet
