Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit?
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@emilymbender I had an appointment last week (Kaiser Permanente) and my doctor asked if I was fine with being recorded and she explained that it made it easier for her to write up a report later.
No mention of AI but that's not to say that's the real reason.
@netopwibby Oof -- so she asked if you were okay being recorded but did not provide info on what was going to happen to the recording?
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E em0nm4stodon@infosec.exchange shared this topic
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
Doctor at Kaiser did ask. I asked what happened if I refused, and they actually weren't able to tell me. So I assume they are recording everything regardless of what I say.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender other than "AI is just fucking wrong a lot?"
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@emilymbender other than "AI is just fucking wrong a lot?"
@the_turtle You could read the post that I was linking to, or you could add to the deluge of mansplaining characteristic of the Fediverse.
You chose option #2.
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System shared this topic
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@netopwibby Oof -- so she asked if you were okay being recorded but did not provide info on what was going to happen to the recording?
@emilymbender Aside from “taking notes,” nope. Didn't seem weird at the time so I didn't probe.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender there are signs at the doctor's offoce saying you can refuse, but when I did I got a lecture on how this helps, and acting like I had no clue what I was talking about. I mentioned I worked in tech and it was dismissed. As I am in an area with few doctors accepting new patients at the moment.... how do I really refuse?
My therapist asked for permission, I declined, and after my session we got into a long conversation about why. At least they were curious about it.
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@the_turtle You could read the post that I was linking to, or you could add to the deluge of mansplaining characteristic of the Fediverse.
You chose option #2.
@emilymbender still, AI is just fucking wrong a lot.
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@emilymbender still, AI is just fucking wrong a lot.
@the_turtle And this is still mansplaining.
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@the_turtle And this is still mansplaining.
@emilymbender@dair-community.social see that block buttton? FUCKING USE IT THEN, SELF-IMPORTANT SHINY LIGHTS ON A SCREEN!
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender My biggest concern is the potential for psychiatric violence. Inaccurate medical notes produced by these systems could very easily be used as evidence of psychosis or some other kind of psychopathology, leading to forced medical treatment. Having already experienced some of that system, it really worries me. I don’t let medical providers use these systems with me.
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Yep. And I said no. She initially said not to worry because it's all deleted afterwards. I said that, no, it is not. That's not how LLM's work. All that data remains in there somewhere and can be hacked, plus I don't want anything about me used to train those things on principal. She didn't argue.
@Mikal @emilymbender I suspect the disconnect here is that based on how medical information is suppised to be handled, she should be right.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender The booking system wouldn't let me proceed without providing consent. I'm allowed to opt-out by providing a written request; I've not (yet) done that.
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@emilymbender The booking system wouldn't let me proceed without providing consent. I'm allowed to opt-out by providing a written request; I've not (yet) done that.
@BoydStephenSmithJr That ... isn't really consent.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
My doc did say she was going to use it, but I said no. She said it's easier for her. I said no. She no longer brings the thing in the room. My cardiologist, however, just put the device on the desk & I said no. He started to hem & haw, reached to turn it on, then said it wasn't working. I talked about lots of things, and how it felt like I had a basketball in my gut. The summary "he" wrote said that I play basketball for exercise. I'm 71 with health issues. He lied.
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Doctor at Kaiser did ask. I asked what happened if I refused, and they actually weren't able to tell me. So I assume they are recording everything regardless of what I say.
@EverydayMoggie @emilymbender That…would honestly scare me more than the initial request, I think. How are you a medical provider and you don’t know what happens when a patient refuses to consent??
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender yes. I said no. Said I was very against it.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender yes. I said no. That I was very much against it.
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Have you been asked by a medical provider recently for consent to have an "AI" scribe record your visit? Us, too. And we have **thoughts**
Why you should refuse to let your doctor record you
By: Emily M. Bender and Decca Muldowney At a recent appointment, Emily’s physical therapist (who knows some about her research) said, “Before we get started,...
(buttondown.com)
@emilymbender yesterday, and I said no.
thanks for putting out a newsletter talking about it
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My doc did say she was going to use it, but I said no. She said it's easier for her. I said no. She no longer brings the thing in the room. My cardiologist, however, just put the device on the desk & I said no. He started to hem & haw, reached to turn it on, then said it wasn't working. I talked about lots of things, and how it felt like I had a basketball in my gut. The summary "he" wrote said that I play basketball for exercise. I'm 71 with health issues. He lied.
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@BoydStephenSmithJr That ... isn't really consent.
@emilymbender I agree. I didn't feel like fighting it. Healthcare in the U.S. is tiring for everyone.
