CIRCLE WITH A DOT

@giacomo @jwildeboer thanks for the feedback - I've added those options!

@paranormal_distribution absolutely. Also, we're very much not creating a new central storage for data - it should always stay where it was collected, the only one who can combine it is the data subject.

Nonetheless, this questionnaire is not about whether we're doing it, nor about the technological or organisational how, but about expectations of what it should deliver to the people who actively want to use something like that.

(This is not to diminish the very obvious privacy and data protection concerns. But covering those in the survey in the depth they deserve would derail from the topic we want to learn about.)

@secid das ist völlig ok. Vielen Dank für die Mühe dennoch!

@giacomo @jwildeboer still waiting for that translation from the project partners, sorry.

I'm not usually posting here with my work-related hat on, but today is an exception:

There's this project I'm working on, which aims to make personal health data accessible and useable for all european citizens, as part of the MyHealth@EU initiative.

And because I'm a product person, I'm asking people what their needs are. So, I'd be very happy and grateful if you could take about 2 to 5 minutes of your time and answer this survey here: https://survey.charite.de/myhmyh/

It's completely anonymous, we don't ask any identifiable data from you, and the results will help us make a better thing.

Of course, reposting and spreading this far and wide is completely fine and appreciated! #fedihelp #health #europe #followerpower #science