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CIRCLE WITH A DOT

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  3. Every woman is reading this right now going “sounds about right.”

Every woman is reading this right now going “sounds about right.”

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  • beachbum@mastodon.sdf.orgB beachbum@mastodon.sdf.org

    @3TomatoesShort @Ashedryden For me, starting when I was four, it was not anxiety, or my imagination, or a ploy for sympathy. It was congenital spinal fusions in my cervical spine, that caused chronic pain, headaches, vomiting etc. it was finally discovered when I was 33. #ItWasntAnxiety

    3tomatoesshort@disabled.social3 This user is from outside of this forum
    3tomatoesshort@disabled.social3 This user is from outside of this forum
    3tomatoesshort@disabled.social
    wrote last edited by
    #36

    @Beachbum
    Oh my goodness, I'm so sorry you weren't taken seriously 💚
    @Ashedryden

    beachbum@mastodon.sdf.orgB 1 Reply Last reply
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    • 3tomatoesshort@disabled.social3 3tomatoesshort@disabled.social

      @Beachbum
      Oh my goodness, I'm so sorry you weren't taken seriously 💚
      @Ashedryden

      beachbum@mastodon.sdf.orgB This user is from outside of this forum
      beachbum@mastodon.sdf.orgB This user is from outside of this forum
      beachbum@mastodon.sdf.org
      wrote last edited by
      #37

      @3TomatoesShort @Ashedryden TY it was a huge relief when it was finally diagnosed.

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      • 3tomatoesshort@disabled.social3 3tomatoesshort@disabled.social

        @Ashedryden
        I feel like we should start a hashtag for it, like:
        #ItWasntAnxiety and then you add what it ended up being for you.
        For me, #ItWasntAnxiety it was POTS and May-Thurner Syndrome.

        beachbum@mastodon.sdf.orgB This user is from outside of this forum
        beachbum@mastodon.sdf.orgB This user is from outside of this forum
        beachbum@mastodon.sdf.org
        wrote last edited by
        #38

        @3TomatoesShort @Ashedryden I’m so sorry. I know a little about POTS, but I’m going to look up the other condition so I’m more informed.

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        • jackmexa4@mastodon.socialJ jackmexa4@mastodon.social

          @sarae @Ashedryden

          That sounds like a terrible doctor! Didn’t they order some tests?

          sarae@ecoevo.socialS This user is from outside of this forum
          sarae@ecoevo.socialS This user is from outside of this forum
          sarae@ecoevo.social
          wrote last edited by
          #39

          @JackMexa4 @Ashedryden of course they didn't

          one, I'm a woman, medical people treat us like shit and assume we're lying crazy bitches most of the time

          no, really, most of the time

          two, while you CAN test for giardia, the antibiotics work so much faster than the test results come back that unless you've decided your patient is an unreliable mendacious idiot, you just give them the antibiotics if they've been around open water

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          • 3tomatoesshort@disabled.social3 3tomatoesshort@disabled.social

            @Ashedryden
            I feel like we should start a hashtag for it, like:
            #ItWasntAnxiety and then you add what it ended up being for you.
            For me, #ItWasntAnxiety it was POTS and May-Thurner Syndrome.

            beachbum@mastodon.sdf.orgB This user is from outside of this forum
            beachbum@mastodon.sdf.orgB This user is from outside of this forum
            beachbum@mastodon.sdf.org
            wrote last edited by
            #40

            @3TomatoesShort @Ashedryden Oh my gosh. That’s awful. I had never heard of it before. Everyone of the treatment sounds very complicated.

            3tomatoesshort@disabled.social3 1 Reply Last reply
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            • beachbum@mastodon.sdf.orgB beachbum@mastodon.sdf.org

              @3TomatoesShort @Ashedryden Oh my gosh. That’s awful. I had never heard of it before. Everyone of the treatment sounds very complicated.

              3tomatoesshort@disabled.social3 This user is from outside of this forum
              3tomatoesshort@disabled.social3 This user is from outside of this forum
              3tomatoesshort@disabled.social
              wrote last edited by
              #41

              @Beachbum
              @Ashedryden
              It's actually quite good news for me! Between MSALD (fatty liver) and May-Thurner, that may explain WHY I have POTS, so I'm hoping that if I can get the MTS treated, I may be able to exercise enough to improve my liver, and also have improvement in my POTS 🤞🏻
              It's likely that a lot of POTS patients have MTS (or something similar) without knowing about it.

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              • ashedryden@xoxo.zoneA ashedryden@xoxo.zone

                RE: https://hachyderm.io/@skinnylatte/116558145727389693

                Every woman is reading this right now going “sounds about right.”

                psychoticscroodlebum@mastodon.socialP This user is from outside of this forum
                psychoticscroodlebum@mastodon.socialP This user is from outside of this forum
                psychoticscroodlebum@mastodon.social
                wrote last edited by
                #42

                @Ashedryden SO sick of doctors dismissing things as "anxiety".

                1 Reply Last reply
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                • gisgeek@floss.socialG gisgeek@floss.social

                  @Ashedryden Unfortunately, anxiety is the typical diagnosis by doctors who have no idea about the possible causes of illness. Understandable, but not justifiably. They should simply admit their impotence, instead.

                  emmaf_77@piaille.frE This user is from outside of this forum
                  emmaf_77@piaille.frE This user is from outside of this forum
                  emmaf_77@piaille.fr
                  wrote last edited by
                  #43

                  @gisgeek @Ashedryden Unfortunately, male doctors are as misogynists as most men and just don't care about women's health. #patriarchy

                  1 Reply Last reply
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                  • 3tomatoesshort@disabled.social3 3tomatoesshort@disabled.social

                    @Ashedryden
                    I feel like we should start a hashtag for it, like:
                    #ItWasntAnxiety and then you add what it ended up being for you.
                    For me, #ItWasntAnxiety it was POTS and May-Thurner Syndrome.

                    emmaf_77@piaille.frE This user is from outside of this forum
                    emmaf_77@piaille.frE This user is from outside of this forum
                    emmaf_77@piaille.fr
                    wrote last edited by
                    #44

                    @3TomatoesShort @Ashedryden #ItWasntAnxiety it was Ehlers-Danlos Syndrom: genetic + epigenetic
                    Epigenetic is cause by deep root complex post traumatic symptoms, not just anxiety.

                    1 Reply Last reply
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                    • ashedryden@xoxo.zoneA ashedryden@xoxo.zone

                      RE: https://hachyderm.io/@skinnylatte/116558145727389693

                      Every woman is reading this right now going “sounds about right.”

                      stixin@mastodon.socialS This user is from outside of this forum
                      stixin@mastodon.socialS This user is from outside of this forum
                      stixin@mastodon.social
                      wrote last edited by
                      #45

                      @Ashedryden she probably had both. Virus was in incubation period.

                      Please try to keep the american gender war away feom us. Thank you

                      1 Reply Last reply
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                      • dnkboston@apobangpo.spaceD dnkboston@apobangpo.space

                        @cousinsd Oh my god. That's more immediately life threatening. That doctor should have apologized. @Ashedryden

                        cousinsd@mastodon.nzC This user is from outside of this forum
                        cousinsd@mastodon.nzC This user is from outside of this forum
                        cousinsd@mastodon.nz
                        wrote last edited by
                        #46

                        @dnkboston @Ashedryden

                        No, no apology, I didn't ask for one. I went back to the same medical centre several days later and requested a different doctor, I was sent straight to hospital. I still attend that medical centre and always refuse appointments with said doctor.

                        1 Reply Last reply
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                        • sarae@ecoevo.socialS sarae@ecoevo.social

                          @Ashedryden OMG I literally got giardia and it took my doctor months -- three lifecycles for the lil wigglers and associated horrible pain for me -- before he stopped telling me I was imagining it and asked if I did any hiking or anything

                          at the time I had a full-time job working outdoors

                          which was in my records but the doctor apparently couldn't get his head around the idea of a woman going outside

                          much easier to believe I'm crazy!

                          antibiotics cleared it up in LESS THAN 12 HOURS

                          crowbriarhexe@tech.lgbtC This user is from outside of this forum
                          crowbriarhexe@tech.lgbtC This user is from outside of this forum
                          crowbriarhexe@tech.lgbt
                          wrote last edited by
                          #47

                          @sarae @Ashedryden 😱😠🫂

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