Sorry I missed this: In December 2025, the #NIH called for public comments on a revision to its data access policy, proposing "controlled-access" for certain kinds of data on human subjects.

[petersuber@fediscience.org]

Sorry I missed this: In December 2025, the #NIH called for public comments on a revision to its data access policy, proposing "controlled-access" for certain kinds of data on human subjects. The proposal would also block access to researchers from certain "Countries of Concern" like China, Cuba, Iran, North Korea, Russia, and Venezuela. The comment deadline was last week.
https://grants.nih.gov/grants/guide/notice-files/NOT-OD-26-023.html

Many neuroscientists submitted objections to the proposal.
https://www.thetransmitter.org/data-sharing/neuroscientists-challenge-nihs-proposed-human-data-access-policy/

One objection: The current policy already requires "de-identification" of shared data on human subjects, and tests show these steps to be effective in blocking re-identification.

Another: Existing data repositories don't have the needed access controls, and data would have to migrate to new infrastructure.

Hence, they argue, the new policy would reduce data sharing, reduce replication studies, increase burdens for researchers, and slow compliance, without improving privacy.

#Data #OpenData #Medicine #Privacy #Trump #TrumpVResearch #USPol #USPolitics