Most autistic people, despite everything, actually like being autistic.
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So what could ethical research look like, instead?
Here's the proposed researchers’ code of ethics:
1. Co-participation,
2. Respectful language,
3. Autistic differences not always as deficits,
4. No alignment with those promoting ABA, eugenics, and similar harms.Far from today's reality.
7/11
Thanks @panda for this! And your work is in the references.
@KatyElphinstone I'm reminded of this *intensely* unethical science paper I read some twenty years or so where scientists electrocuted fish.
Why? To find out whether fish felt pain.
Their conclusion? They exhibit some behaviour patterns that suggest they could, but more research (i.e. electrocution) is required. You can't be sure, after all.
If this seems particularly disturbing, as if it's just some psychopaths using science as an excuse to live out their sicko fantasies ...
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Most autistic people, despite everything, actually like being autistic.
Not all, of course. But most of us.
And I don’t just mean ‘making peace with it’.I mean: it's bound up with who we are.
A thread 🧵
1/11
(refs at the end)
#Autism #ActuallyAutistic #NeurodivergentI completely agree. I wouldn't want a "cure" if where was one - but that's when referring to the condition as a whole. Certain bits I could sure do without and actively work on changing: like being able to recognize emotions by facial expression (or to be able to show my own more clearly).
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@KatyElphinstone I'm reminded of this *intensely* unethical science paper I read some twenty years or so where scientists electrocuted fish.
Why? To find out whether fish felt pain.
Their conclusion? They exhibit some behaviour patterns that suggest they could, but more research (i.e. electrocution) is required. You can't be sure, after all.
If this seems particularly disturbing, as if it's just some psychopaths using science as an excuse to live out their sicko fantasies ...
@KatyElphinstone ...in public, well no, apparently.
Apparently I'm anthropomorphizing animals, which is a science no-no. I am assigning human-like qualities to them, based on the undeniable observation that they act similar to humans when placed into similar situations.
That's not how it's done! *tuts in science*
Clearly it is significantly more ethical to discard the evidence in front of us, so we can continue to abuse other creatures at will.
This is done ...
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@KatyElphinstone ...in public, well no, apparently.
Apparently I'm anthropomorphizing animals, which is a science no-no. I am assigning human-like qualities to them, based on the undeniable observation that they act similar to humans when placed into similar situations.
That's not how it's done! *tuts in science*
Clearly it is significantly more ethical to discard the evidence in front of us, so we can continue to abuse other creatures at will.
This is done ...
@KatyElphinstone ... to women in medicine. This is done to people of colour. This is done to autistics.This is a pattern of systemic abuse.
And there is *always* someone who profits from this.
I'm pretty fed up with that kind of attitude as you might imagine.
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@KatyElphinstone ...in public, well no, apparently.
Apparently I'm anthropomorphizing animals, which is a science no-no. I am assigning human-like qualities to them, based on the undeniable observation that they act similar to humans when placed into similar situations.
That's not how it's done! *tuts in science*
Clearly it is significantly more ethical to discard the evidence in front of us, so we can continue to abuse other creatures at will.
This is done ...
It certainly is! Anthropomorphism my ... (ahem)...
I mentioned it too, in my article here: https://www.neurofabulous.org.uk/furries-and-therians.html
(and apologies for the images: I genuinely didn't know they were AI generated, at the time, and I plan to change them - they were just stock photos)
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It certainly is! Anthropomorphism my ... (ahem)...
I mentioned it too, in my article here: https://www.neurofabulous.org.uk/furries-and-therians.html
(and apologies for the images: I genuinely didn't know they were AI generated, at the time, and I plan to change them - they were just stock photos)
My words were:
"And anybody who indulges in anthropomorphism, e.g. "Oh look, I stepped on my dog's paw and he yelped... do you think he might feel pain?" (okay, I'm exaggerating a little) is frowned upon.
It's traditionally considered silly and 'womanish' to attribute feelings and thoughts to anyone who doesn't look like us or speak like us."
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Here are the references for this thread:
Epistemic injustice: Autism, by K.J. Elphinstone
Epistemic injustice: Autism
Neurofabulous (www.neurofabulous.org.uk)
@KatyElphinstone thank you (again
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Most autistic people, despite everything, actually like being autistic.
Not all, of course. But most of us.
And I don’t just mean ‘making peace with it’.I mean: it's bound up with who we are.
A thread 🧵
1/11
(refs at the end)
#Autism #ActuallyAutistic #Neurodivergent@KatyElphinstone Curing myself of Autism would be just as, if not more, disrespectful towards my ancestors than cutting off my hair.永
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Here are the references for this thread:
Epistemic injustice: Autism, by K.J. Elphinstone
Epistemic injustice: Autism
Neurofabulous (www.neurofabulous.org.uk)
@KatyElphinstone Fantastic thread Katy.
I've long felt exactly what you said in the first t00t and remember refusing a particular therapeutic intervention 20 years ago (EMDR) because I feared it would change who I am. That was many years before realising I was autistic. Life is bloody hard being #ActuallyAutistic but it is who I am and I love who I am.
What I do not love is how difficult it is to be me in a society that doesn't want to know who I am, let alone accommodate me.
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Here are the references for this thread:
Epistemic injustice: Autism, by K.J. Elphinstone
Epistemic injustice: Autism
Neurofabulous (www.neurofabulous.org.uk)
Looking into the origin of the phrase 'high functioning autistic' really opened my eyes. They want what they can use.
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Most autistic people, despite everything, actually like being autistic.
Not all, of course. But most of us.
And I don’t just mean ‘making peace with it’.I mean: it's bound up with who we are.
A thread 🧵
1/11
(refs at the end)
#Autism #ActuallyAutistic #Neurodivergent@KatyElphinstone I'm autistic. I like being autistic. I have skills that most people dont have.
What hurts me is the distain most people have for autism, and try to change me, boss me around, and do anything they feel will motivate me to be doing something I dont want to be doing, because "everyone does it"
I am not like most people.
I want people to appreciate me for who I am, different, not deficit.Society's general perception of autism is the problem, not me.
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@KatyElphinstone thank you (again
) -
Looking into the origin of the phrase 'high functioning autistic' really opened my eyes. They want what they can use.
@Orb2069 @KatyElphinstone very much agreed
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Looking into the origin of the phrase 'high functioning autistic' really opened my eyes. They want what they can use.
Ouch! And yes, it's very explicit, isn't it... "functioning"
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I completely agree. I wouldn't want a "cure" if where was one - but that's when referring to the condition as a whole. Certain bits I could sure do without and actively work on changing: like being able to recognize emotions by facial expression (or to be able to show my own more clearly).
Yes - I could do without my nervous system making my body go into literal agony (physical pain) when I'm distressed, stressed out, or upset by something. That would be nice to not have (although, then again, I guess it is informing me that something's amiss..)
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@KatyElphinstone I'm autistic. I like being autistic. I have skills that most people dont have.
What hurts me is the distain most people have for autism, and try to change me, boss me around, and do anything they feel will motivate me to be doing something I dont want to be doing, because "everyone does it"
I am not like most people.
I want people to appreciate me for who I am, different, not deficit.Society's general perception of autism is the problem, not me.
Exactly. And I agree with you about where that problem lies.
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Most autistic people, despite everything, actually like being autistic.
Not all, of course. But most of us.
And I don’t just mean ‘making peace with it’.I mean: it's bound up with who we are.
A thread 🧵
1/11
(refs at the end)
#Autism #ActuallyAutistic #Neurodivergent@KatyElphinstone It’s literally in my DNA for me.
(It is mentioned in the genetic diagnostic I got after my first breast cancer).
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@KatyElphinstone I'm autistic. I like being autistic. I have skills that most people dont have.
What hurts me is the distain most people have for autism, and try to change me, boss me around, and do anything they feel will motivate me to be doing something I dont want to be doing, because "everyone does it"
I am not like most people.
I want people to appreciate me for who I am, different, not deficit.Society's general perception of autism is the problem, not me.
@GreenRoc @KatyElphinstone amen to that. I feel you because I am the same, but more and more I just tell people that what I do or don't is because of that, then they stopped doing whatever they did that was annoying.
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I completely agree. I wouldn't want a "cure" if where was one - but that's when referring to the condition as a whole. Certain bits I could sure do without and actively work on changing: like being able to recognize emotions by facial expression (or to be able to show my own more clearly).
@jmcclure @KatyElphinstone Similarly, I wouldn't want to change my general brain operating system - or perhaps more accurately can't imagine what it'd be like to have a different one! - but wish I didn't get so easily overloaded by light and sound
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Most autistic people, despite everything, actually like being autistic.
Not all, of course. But most of us.
And I don’t just mean ‘making peace with it’.I mean: it's bound up with who we are.
A thread 🧵
1/11
(refs at the end)
#Autism #ActuallyAutistic #Neurodivergent
🥰
