#Introduction
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@Geri
hello again new-instance-same-Geri@magsamond Did you get moved automatically? xx
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Hello squirrels,
I am almost as famous as that other Geri, but unlike her, I have a neurodegenerative disease called #Dystonia, but it is only others who see me as disabled. I am also a big-bottomed, anarchist, green type and a connoisseur of fine wine, although I will quaff any old rubbish.
I am a poor speller and swear more than a decent person ought to.
I love people who love other people and hate those who do not.
I mean no harm.
*snogs*
@Geri you're hillarious
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@ArabellaLovejoy @Geri "flounce" is *chef's kiss*!
I'd submit the adjectives "cosmic" "dapper", and "wholly" - that last one is very Norfolk.
The noun "lummox" needs to come back into use, as does "scatterbrain".
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@Geri *snogs* right back atcha, lovely.
@Remittancegirl woot woot
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@Fragarach more characters and the veganism chimes with my personal reflection
I wrote to the admin, indicating the kind of matters I dwell on, and he very kindly welcomed me into his instance
I shall try not to disappoint
Xxx
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@PhilSalkie gorgeous
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Hello squirrels,
I am almost as famous as that other Geri, but unlike her, I have a neurodegenerative disease called #Dystonia, but it is only others who see me as disabled. I am also a big-bottomed, anarchist, green type and a connoisseur of fine wine, although I will quaff any old rubbish.
I am a poor speller and swear more than a decent person ought to.
I love people who love other people and hate those who do not.
I mean no harm.
*snogs*
@Geri Hi *wave*. I hope the dystonia isn’t painful (I just googled and my first thought was involuntary movement/position sounds painful.). I have Hermansky Pudlak Syndrome, which is so rare that I learnt about it from 1 dr (who’s involved in albinism networds) and the only other medical professional I’ve met who already knew about it was recommended to me by that dr. I’ve had 2 haematologists who research platelet abnormalities and NEITHER had heard of it before! It’s a weird world.
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@Geri Hi *wave*. I hope the dystonia isn’t painful (I just googled and my first thought was involuntary movement/position sounds painful.). I have Hermansky Pudlak Syndrome, which is so rare that I learnt about it from 1 dr (who’s involved in albinism networds) and the only other medical professional I’ve met who already knew about it was recommended to me by that dr. I’ve had 2 haematologists who research platelet abnormalities and NEITHER had heard of it before! It’s a weird world.
@DarkMatterZine I have not heard of this before. I hope you are getting suitable treatment. For my part it was agonising but botox is very effective, although it wears off. I hope next year to have electrical wire things put into my brain that will control the nerves and allow me to watch TV without a TV licence, or seek out sources of water, or become a one woman human electrode
Let me know how you are doing. We can swap tales of blood and pain
Take care xxxx
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@magsamond Did you get moved automatically? xx
@Geri your post appeared as per usual on my timeline, but I had to choose Follow again
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@Geri your post appeared as per usual on my timeline, but I had to choose Follow again
@magsamond who can tell how these things work, but thank you very much anyway, Mags xx
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R relay@relay.mycrowd.ca shared this topic
