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  3. Hello, #Fedi!

Hello, #Fedi!

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helpfedidiabeteslupus
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  • likelyjanlukas@mstdn.caL This user is from outside of this forum
    likelyjanlukas@mstdn.caL This user is from outside of this forum
    likelyjanlukas@mstdn.ca
    wrote last edited by
    #1

    Hello, #Fedi! I posted earlier about not finding very good/detailed info re #diabetes earlier … completely failing to remember that there are likely lots of folks here who could point me to good resources. (Thank you @canadianglen for the suggestion!)

    I was #dx'd maybe 4 yrs ago but have had problems since I was first put on #corticosteroids as a kid for #Lupus. The most recent time I had to use those I now also had a #CGM and insulin, so when those very old yet familiar sensations of extreme #BloodSugar highs came back, it was a bitter recognition.

    Anyhow … I'm in Canada and my CGM measures in mmol/L (so numbers for me may range from 3.2 to 21 mmol/L).

    I have both #Tresiba (basal) and #Truapi (fast) injectable pens but more often than not have hours or days of uncontrolled highs for no reason I can ascertain.

    Any good resources folks have to share?

    Grateful for leads/suggestions. 🙂

    #ResourceRequest
    #Help
    #HelpPlease

    srlevine@neuromatch.socialS C 2 Replies Last reply
    0
    • likelyjanlukas@mstdn.caL likelyjanlukas@mstdn.ca

      Hello, #Fedi! I posted earlier about not finding very good/detailed info re #diabetes earlier … completely failing to remember that there are likely lots of folks here who could point me to good resources. (Thank you @canadianglen for the suggestion!)

      I was #dx'd maybe 4 yrs ago but have had problems since I was first put on #corticosteroids as a kid for #Lupus. The most recent time I had to use those I now also had a #CGM and insulin, so when those very old yet familiar sensations of extreme #BloodSugar highs came back, it was a bitter recognition.

      Anyhow … I'm in Canada and my CGM measures in mmol/L (so numbers for me may range from 3.2 to 21 mmol/L).

      I have both #Tresiba (basal) and #Truapi (fast) injectable pens but more often than not have hours or days of uncontrolled highs for no reason I can ascertain.

      Any good resources folks have to share?

      Grateful for leads/suggestions. 🙂

      #ResourceRequest
      #Help
      #HelpPlease

      srlevine@neuromatch.socialS This user is from outside of this forum
      srlevine@neuromatch.socialS This user is from outside of this forum
      srlevine@neuromatch.social
      wrote last edited by
      #2

      @likelyjanlukas tagging @arisummerland who almost certainly has resources

      arisummerland@beige.partyA 1 Reply Last reply
      0
      • srlevine@neuromatch.socialS srlevine@neuromatch.social

        @likelyjanlukas tagging @arisummerland who almost certainly has resources

        arisummerland@beige.partyA This user is from outside of this forum
        arisummerland@beige.partyA This user is from outside of this forum
        arisummerland@beige.party
        wrote last edited by
        #3

        @SRLevine @likelyjanlukas Appreciate the tag, Sam, but I am kind of in a "figuring out the mystery" phase right now as well, having only started with a CGM. Stress and sleep both seem to have strong effects (negative -- spiking glucose). So sometimes it feels like the liver is fighting the pancreas from across the abdomen. 😩

        srlevine@neuromatch.socialS 1 Reply Last reply
        0
        • arisummerland@beige.partyA arisummerland@beige.party

          @SRLevine @likelyjanlukas Appreciate the tag, Sam, but I am kind of in a "figuring out the mystery" phase right now as well, having only started with a CGM. Stress and sleep both seem to have strong effects (negative -- spiking glucose). So sometimes it feels like the liver is fighting the pancreas from across the abdomen. 😩

          srlevine@neuromatch.socialS This user is from outside of this forum
          srlevine@neuromatch.socialS This user is from outside of this forum
          srlevine@neuromatch.social
          wrote last edited by
          #4

          @arisummerland @likelyjanlukas Ah, I'm sorry! For some reason I thought you'd had it longer in a different form. Good luck to both of you then!

          arisummerland@beige.partyA 1 Reply Last reply
          0
          • srlevine@neuromatch.socialS srlevine@neuromatch.social

            @arisummerland @likelyjanlukas Ah, I'm sorry! For some reason I thought you'd had it longer in a different form. Good luck to both of you then!

            arisummerland@beige.partyA This user is from outside of this forum
            arisummerland@beige.partyA This user is from outside of this forum
            arisummerland@beige.party
            wrote last edited by
            #5

            @SRLevine @likelyjanlukas No worries! I'm still in a learning phase, so I definitely need to connect with other people who are working through similar.

            likelyjanlukas@mstdn.caL 1 Reply Last reply
            0
            • likelyjanlukas@mstdn.caL likelyjanlukas@mstdn.ca

              Hello, #Fedi! I posted earlier about not finding very good/detailed info re #diabetes earlier … completely failing to remember that there are likely lots of folks here who could point me to good resources. (Thank you @canadianglen for the suggestion!)

              I was #dx'd maybe 4 yrs ago but have had problems since I was first put on #corticosteroids as a kid for #Lupus. The most recent time I had to use those I now also had a #CGM and insulin, so when those very old yet familiar sensations of extreme #BloodSugar highs came back, it was a bitter recognition.

              Anyhow … I'm in Canada and my CGM measures in mmol/L (so numbers for me may range from 3.2 to 21 mmol/L).

              I have both #Tresiba (basal) and #Truapi (fast) injectable pens but more often than not have hours or days of uncontrolled highs for no reason I can ascertain.

              Any good resources folks have to share?

              Grateful for leads/suggestions. 🙂

              #ResourceRequest
              #Help
              #HelpPlease

              C This user is from outside of this forum
              C This user is from outside of this forum
              careclinic@mastodon.social
              wrote last edited by
              #6

              I know that feeling so well. Once I started noting my triggers alongside my symptoms, things clicked. CareClinic has been helpful for staying on top of things.

              likelyjanlukas@mstdn.caL 1 Reply Last reply
              0
              • arisummerland@beige.partyA arisummerland@beige.party

                @SRLevine @likelyjanlukas No worries! I'm still in a learning phase, so I definitely need to connect with other people who are working through similar.

                likelyjanlukas@mstdn.caL This user is from outside of this forum
                likelyjanlukas@mstdn.caL This user is from outside of this forum
                likelyjanlukas@mstdn.ca
                wrote last edited by
                #7

                @arisummerland @SRLevine

                Thank you for letting me know I'm not alone in all this! 🙂

                Sorry to have dropped out of the world for a bit … lots to deal with lately and insufficient energy to attend to all. 😐

                1 Reply Last reply
                0
                • C careclinic@mastodon.social

                  I know that feeling so well. Once I started noting my triggers alongside my symptoms, things clicked. CareClinic has been helpful for staying on top of things.

                  likelyjanlukas@mstdn.caL This user is from outside of this forum
                  likelyjanlukas@mstdn.caL This user is from outside of this forum
                  likelyjanlukas@mstdn.ca
                  wrote last edited by
                  #8

                  @careclinic

                  That's an excellent point -- I definitely still have some triggers to figure out. I'm pretty good at balancing carbs with proteins most of the time and have long eaten multiple small meals vs 2-3 larger ones.

                  I expect that's how I managed to avoid needing insulin for so long, but it's still a lot to figure out. 😬

                  1 Reply Last reply
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