Today is Rare Disease Day.
-
Today is Rare Disease Day.
I've got two of those.
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
-
R relay@relay.infosec.exchange shared this topic
-
Today is Rare Disease Day.
I've got two of those.
First is familial hypercholesterolemia. This is not your run--of-the-mill hypercholesterolemia. No. This cannot be just treated with diet and exercise. Even the statins aren't great at treating it. The state of the art is a PCSK9 inhibitor. This, this does wonders.
Then, there's the PCNS lymphoma. Lymphomas are already considered rare. The PCNS form is even rarer. I'm over 5 years in remission and doing fine.
May we eradicate all diseases, from the commonest to the rarest.
#RareDiseaseDay2026 #RareDiseaseDay #hypercholesterolemia #FamilialHypercholesterolemia #PCSK9Inhibitor #lymphoma #cancer #PCNSLymphoma #CancerSurvivor #HeartAttackSurvivor
@yourautisticlife when we used to get patients with hypercholesterolemia in the lab, we would have to centrifuge the blood samples like 3 times before we could test them. there was one guy whos trigs were in like 400s! it was crazy because he didnt seem to have any other issues
