After numerous trials I’ve finally found a mask that works for me on my CPAP.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 15:44:30 GMT

damm@expressional.social — Mon, 18 May 2026 15:44:30 GMT

@Pinchy63 I will tell him. And thank you. You are so cool. I wish you all the best.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 15:38:17 GMT

pinchy63@ottawa.place — Mon, 18 May 2026 15:38:17 GMT

@Damm
Tell your son he’s not alone. I’m averaging about 3-4 hrs a night. I despise it but I’ve had two night of 7-8 hrs of sleep so I chase that high every night.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 14:58:08 GMT

damm@expressional.social — Mon, 18 May 2026 14:58:08 GMT

@Pinchy63
It's my son using the mask.
And because he never stops breathing, but never breathes deeply during the first part of the night, we spoke with the doctor, and got permission to stop using it every night after 4 to 5 hours of use.
It helps him, but he dislikes using the CPAP.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 14:49:57 GMT

pinchy63@ottawa.place — Mon, 18 May 2026 14:49:57 GMT

@Damm
Ah thank you! I’ve been on it for months now. Some days are better than others. I hope it works for you too. Did your doctor advise you to wear the mask around before using it with the machine? Helps with desensitization. That was a game changer for me.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 14:00:28 GMT

damm@expressional.social — Mon, 18 May 2026 14:00:28 GMT

@Pinchy63 If you succeed, you'll be one of the cool people. One doctor I spoke with told me that only about 50 percent will come to like living with their CPAP, so I'm voting for you.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 13:34:13 GMT

pinchy63@ottawa.place — Mon, 18 May 2026 13:34:13 GMT

@Damm
Unfortunately no, I don’t know of any groups. Wish I’d did. My doctor is my only source of information. Good luck on your journey. I hope it works fast for you. I’m still struggling with the blast of air when I stop breathing. Ugh.

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 13:29:46 GMT

damm@expressional.social — Mon, 18 May 2026 13:29:46 GMT

@Pinchy63 A question. I found you when I made a search for fibromyalgia. I got the diagnosis last Wednesday. Do you know if there are some good groups I can contact?
I'm totally new with the diagnosis, even though I know the daily pain all too well

Reply to After numerous trials I’ve finally found a mask that works for me on my CPAP. on Mon, 18 May 2026 08:43:43 GMT

damm@expressional.social — Mon, 18 May 2026 08:43:43 GMT

@Pinchy63
Hi.
My son also use cpap and was sad he could only lie on one side otherwise the mask fell of, so we took the tube and liftet it with a string, so now the tube follow the mask when he turn his head, and seldom leaks.